Implement NICE ME/CFS guideline for safe, empathetic & equitable healthcare

WAMES asks NHS Wales:  Don’t delay! Implement NICE ME/CFS guideline for safe, empathetic & equitable healthcare Poor healthcare for many with ME/CFS in Wales. A new WAMES report into the implementation in Wales of the 2007 NICE guideline illustrates how: few GPs admit being aware of the guidelines and those who…

Continue ReadingImplement NICE ME/CFS guideline for safe, empathetic & equitable healthcare

NICE ME/CFS guideline – doctors’ leaders reject ‘evidence based’ change

NICE 2021 ME/CFS guideline –  Doctors’ leaders reject ‘evidence based’ change, but many believe the guideline can be transformative. On the whole patients are relieved that the revised NICE guideline for ME/CFS has at last been published and are pleased with the change in direction it has... News | WAMES…

Continue ReadingNICE ME/CFS guideline – doctors’ leaders reject ‘evidence based’ change

How the media reported on the UK’s new ME/CFS guideline

Media coverage of the publication of the new NICE guideline in the UK was impressive in its geographical spread and range of publications who reported on the story. The volume of articles shows the importance of the new guideline and highlights the increased awareness of the issues amongst the UK…

Continue ReadingHow the media reported on the UK’s new ME/CFS guideline

Get Germany to 50K signatures – Anyone Can Sign!

A team of ME/CFS advocates have launched a petition to raise awareness about the dire situation in Germany. Help Germany get to 50,000 signatures by Tuesday, Nov. 9th and they will be granted a public hearing in the German Bundestag to finally draw attention to the issue of ME/CFS . …

Continue ReadingGet Germany to 50K signatures – Anyone Can Sign!

NICE ME/CFS guideline – ME community expresses hope & caution

NICE ME/CFS guidelineCautious welcome from WAMES & the ME community WAMES welcomes the publication of the 2021 NICE guideline for ME/CFS and the decision by NICE to ‘follow the science’ regarding... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More

Continue ReadingNICE ME/CFS guideline – ME community expresses hope & caution

Send a message of thanks to NICE committee members

After 3 years of hard work by an independent guideline committee, the new ME/CFS guideline, published by the National Institute for Health and Care Excellence (NICE), contains major improvements. Work must now take place to ensure this guideline is implemented accurately and with people with ME at the heart of…

Continue ReadingSend a message of thanks to NICE committee members

Sign petition to support German people with ME

A petition to the German Bundestag is gaining increasing numbers of signatures. But it still needs your help. Sign for ME/CFS If they can reach 50,000 signatures by the 9th November they will automatically be granted a public hearing with the German Bundestag. To sign you must complete three steps:…

Continue ReadingSign petition to support German people with ME

Final NICE ME/CFS Guideline Published – Find Out The Big News!

The National Institute for Health and Care Excellence (NICE) has now published its ME/CFS guideline and we are delighted that they have finally listened to the ME community in several key areas. NICE delayed publication of this guideline in August after concerns were raised by a few Royal Colleges. Instead,…

Continue ReadingFinal NICE ME/CFS Guideline Published – Find Out The Big News!