NICE announces next steps for publication of its guideline on ME/CFS NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). NICE will publish the guideline following a meeting of its Guidance…
Your advocacy efforts are creating historic opportunities for federal funding of research and ME/CFS education. Two particular pieces of proposed legislation have great potential and I wanted to share my thoughts on each of them Solve M.E. is proud to support The COVID-19 and Pandemic Response Centers of Excellence Act…
Be sure to attend the telebriefing by the Trans-NIH ME/CFS Working Group this Friday (10/22) at 3PM ET. The National Institutes of Health (NIH) has many questions to answer about its lack of tangible progress or strategic acceleration of medical research for people with ME. Read Our Questions for NIH…
After NICE's roundtable, Janet Sylvester tells us: “I felt this was a positive meeting. There were large areas of agreement from all attendees, including all acknowledging the terrible experiences people with ME have had to endure. Together, the representatives from ME patient organisations were able to strongly get across the…
Who: Ron Davis’s lab at Stanford University is conducting a functional microbiome study in collaboration with Harvard University and Vassar College. They are looking for severely Ill, primarily bed-bound patients within the United States to participate. What: Participants will be asked to provide a one-time fecal swab which can be…
October 18, 2021 Update from Forward-ME on this afternoon’s roundtable event hosted by the National Institute for Health and Care Excellence (NICE) today. The event will aim to discuss key issues… This post first appeared on Action for M.E. Read more >>
October 14, 2021 The Royal College of GP's annual conference is the must attend-event of the year for GPs and practice team colleagues, showcasing the latest clinical and policy developments across… This post first appeared on Action for M.E. Read more >>
All are welcome to ANZMES AGM to be held via ZOOM this year, Saturday 6th November starting at 1pm. Featuring guest speaker Dr Ros Vallings speaking on the latest research and Dr Sarah Dalziel speaking about pain management. Dr Warren Tate will also be on hand to answer any of…
There are some therapies which are commercially based, and they come undermany names. Lightning Process is one that has been widely known, but has in some cases been rebranded... This post first appeared on ANZMES. Read More
The House of Lords, Tuesday 12 October 2021 Oral questions: Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome. Lord Kamall, the Parliamentary Under-Secretary of State, Department of Health and Social Care, answered questions from members of the House of Lords…