October 13, 2021 On Monday, Action for M.E. will attend a roundtable meeting hosted by the National Institute for Health and Care Excellence (NICE). NICE has invited representatives from a range of… This post first appeared on Action for M.E. Read more >>
A person with ME (who wishes to remain anonymous online) sent this letter to the author of The New Yorker article, “The Struggle to Define Long COVID,” and to the magazine’s editor. #MEAction was also concerned to see The New Yorker publish such a disparaging and flawed article about the Long COVID…
October 11, 2021 Update from Forward-ME on the upcoming round table event, hosted by the National Institute for Health and Care Excellence (NICE) next Monday (18 October), to "discuss key issues raised… This post first appeared on Action for M.E. Read more >>
#MEAction UK will be sending a representative to the NICE roundtable discussion on the final ME/CFS guideline, and have had a pre-meeting with NICE to raise our concerns about the delay to publication... This post appeared first on #MEAction Network. Read More
The Hāpai Access Card was created as a means to communicate the access requirements for people living with disabilities. The definition of disability in New Zealand used by the government is... This post first appeared on ANZMES. Read More
Friday, 8 October 2021, 11:24 am Press Release: Long Covid now has a formal definition – setting out agreed symptoms and timeframes to help spot the common post-Covid condition. The World Health Organization’s case definition aims to help doctors across the world to assess and diagnose long Covid. The illness…
We are deeply saddened to learn of the death of Graham McPhee, citizen scientist and champion for people with M.E./CFS. A former maths teacher, Graham took a forensic approach to… This post first appeared on Action for M.E. Read more >>
David Tuller’s fundraiser is now live! Tuller has been tireless in his battle against the GET/CBT ideological onslaught! He has much more work to do and he needs our support. Tuller has written more than... This post first appeared on American ME and CFS Society. Read More
#MEAction is proud to be a founding member of the World ME Alliance, a coalition of national ME/CFS organisations, which announces today a major name change and rebrand from the International Alliance for ME. To modernise and promote its unique role, the World ME Alliance is launching a new website,…
As a founding member of the International Alliance for ME, WAMES is excited to be part of the development and launch of the World ME Alliance. The Alliance is the only organisation in the world to bring together national ME/CFS organisations to advocate for better recognition and treatments for Myalgic…