Millions Missing Mexico joins the World ME Alliance as first member from Latin America

We are thrilled to announce that Millions Missing Mexico, a voluntary organisation dedicated to raising awareness about Myalgic Encephalomyelitis (ME) and supporting patients, has joined the World ME Alliance as its 22nd member and the first member from Latin America. Millions Missing Mexico was founded in 2018 by a group…

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Millions Missing Mexico

Member Millions Missing Mexico is a voluntary organisation dedicated to raising awareness about Myalgic Encephalomyelitis (ME) and supporting people with the disease in Mexico. The organisation was founded in 2018 by a group of people with ME and their caregivers who were frustrated by the lack of knowledge and resources…

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Engaging with the WHO over disability health equity

Following our letter to the World Health Organization (WHO) highlighting critical gaps in their “Global report on health equity for persons with disabilities”, we have met with officials to discuss our recommendations. This was a positive discussion on the importance of including those with energy limiting disabilities in global health…

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2023 World ME Day campaign announced

The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people begin to understand this disease more accurately. That’s why our tagline this year is “ME: the disease where pushing harder can make…

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Highlighting critical gaps in the WHO “Global report on health equity for persons with disabilities”

On the 2nd December 2022, the World Health Organization (WHO) published an important global report on health equity for persons with disabilities. The report is based upon the principle that persons with disabilities have the right to the highest attainable standard of health as those without disabilities. It demonstrates that…

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Japan ME Association joins the World ME Alliance

As we begin 2023, we are proud to announce the Japan ME Association is joining our World ME Alliance. We are hopeful that this will be a fruitful relationship, extending our global reach as we build a stronger ME community together, and supporting the Japan ME Association in its activities.…

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Japan ME Association

Member Japan ME Association (JMEA) is a non-profit organisation based in Tokyo, Japan. Their mission is to help create a society where persons with ME are able to receive effective medical care and social security, and where they can live in hope of returning to their healthy lives. They have…

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An Evolving Landscape: Long Covid’s Impact on ME/CFS

It’s hard to believe that we’re well into the third year of the COVID-19 pandemic, which coincidentally overlaps with my time as Solve M.E.’s President and CEO. In this time... The post An Evolving Landscape: Long Covid’s Impact on ME/CFS appeared first on Solve ME/CFS Initiative.... Read More >>

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Millions Missing France joins the World ME Alliance

With great excitement, we announce our 20th member, and yet another country joining our ranks! Today Millions Missing France officially joins our Alliance, providing yet more global reach and we build a stronger ME community together. Millions Missing France was founded in 2018, and has since grown to become a…

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Millions Missing France

Member Millions Missing France is a voluntary, non-hierarchical organisation based in Auvergne. The team behind this organisation advocate for people with ME across France. Founded in 2018 they are led by a college of six members all of whom have personal experience of ME. This personal experience, including experience of…

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