“Please prevent thousands and thousands more people from developing ME.”

“We deserve attention.“

“In my community, it’s taboo to be too sick.“

“Building a community saved my life.“

“People have no idea what Severe ME is like.”

“I don’t look sick.

But I am sick.”

“I’m on a lonely island, surrounded by a turbulent sea”

“We shouldn’t be out of sight, out of mind”

“I am the care provider of myself”

“I fear being conscripted”

“Everyday I am walking the tiniest tightrope of forward progress”

“I miss the real Priscilla, who loves to dance”