Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

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15 member organisations

in 9 countries

and growing

Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

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Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?

Let’s build cross-disease partnerships

Latest News From Our Members

Solve M.E. Spearheads the First Nationwide Long Covid PSA campaign

11 August 2022

We are excited to announce a new program being introduced by Solve M.E. and invite our community play an important part in its roll out. Solve M.E. is on the…

Severe ME Day – August 8th 2022

4 August 2022

Severe ME Day takes place every year on August 8th. It is considered a day for remembrance of those who suffer from and have died from severe myalgic encephalomyelitis (ME),…

Just In Time for the School Year: A New Pediatric Pacing Guide

3 August 2022

#MEAction is excited to share a new and much-needed resource just in time for back to school! We are so thankful to have our allies at Long Covid Families join…

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