Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

21 member organisations

in 14 countries

and growing


Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?


Latest News From Our Members

2023 World ME Day campaign announced

2023 World ME Day campaign announced

The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people begin to…

Highlighting critical gaps in the WHO “Global report on health equity for persons with disabilities”

Highlighting critical gaps in the WHO “Global report on health equity for persons with disabilities”

On the 2nd December 2022, the World Health Organization (WHO) published an important global report on health equity for persons with disabilities. The report is based upon the principle that…

Japan ME Association joins the World ME Alliance

Japan ME Association joins the World ME Alliance

As we begin 2023, we are proud to announce the Japan ME Association is joining our World ME Alliance. We are hopeful that this will be a fruitful relationship, extending…


Our members

Our member organisations are fighting for people with ME across the globe. Here’s a few of the organisations collaborating with us, but you can view all of them here.

ACAF

ACAF

ME Support (IOM)

ME Support (IOM)

ME/CVS Stichting Nederland

ME/CVS Stichting Nederland

Millions Missing Belgique

Millions Missing Belgique

12ME

12ME

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

European ME Coalition

European ME Coalition

WAMES – Welsh Association of ME & CFS Support

WAMES – Welsh Association of ME & CFS Support