Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

21 member organisations

in 14 countries

and growing


Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?


Latest News From Our Members

Global Advocacy Leaders Speak Out on Post-Exertional Malaise for World ME Day

Global Advocacy Leaders Speak Out on Post-Exertional Malaise for World ME Day

Myalgic Encephalomyelitis (ME) is a debilitating and complex condition that affects millions of people across the globe. On May 12th, World ME Day is observed to raise awareness of this…

Around the world for World ME Day 2023!

Around the world for World ME Day 2023!

World ME Day takes place on May 12th to raise awareness of myalgic encephalomyelitis (ME), a debilitating and often misunderstood illness. This year, organizations from around the world have come…

Video yourself for World ME Day!

Video yourself for World ME Day!

Final call-to-action for World ME Day 2023. Follow Holly’s example and tell the world what happens when pushing harder makes you sicker for World ME Day. ME, or Myalgic Encephalomyelitis,…