Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) oeganisations across the globe. Could your national organisation benefit from international support?

15 member organisations

in 9 countries

and growing

Our Purpose

A world without ME/CFS


A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.


The pooling, sharing, and dissemination of advocacy and communication of resources.


The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?

Latest News From Our Members

#MEAction Recognizes & Celebrates Pride Month 2022!

#MEAction Recognizes & Celebrates Pride Month 2022!

#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked members of our LGBTQIA+ community to share what Pride means to…

Top 10 ME/CFS Recommendations for the Long COVID National Research Action Plan US

#MEAction has been hard at work continuing to advocate to the Department of Health and Human Services (HHS) on behalf of people with ME and Long COVID since our last…

Severe ME Artists Project 2022!

#MEAction is once again excited to announce our Severe ME Artists Project 2022 that will feature work from those within the severe ME community and will be in recognition of…