Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

25 member organisations

in 18 countries

and growing


Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?


Latest News From Our Members

Introducing MYOS: Portugal’s Leading ME and Fibromyalgia Charity

Introducing MYOS: Portugal’s Leading ME and Fibromyalgia Charity

We are excited to welcome MYOS (Associação Nacional Contra a Fibromialgia e Síndrome de Fadiga Crónica) as the newest member of the World ME Alliance and the first organisation from…

Standing Strong: Global ME Community unified in support of NICE 2021 ME/CFS Guideline

Standing Strong: Global ME Community unified in support of NICE 2021 ME/CFS Guideline

Leaders in the ME community from across the globe joined in writing a rapid response to the July 2023 article titled “Anomalies in the review process and interpretation of the…

#EndMalnutritionInME – Severe ME Day 2023

#EndMalnutritionInME – Severe ME Day 2023

August 8th marks an important day for the global ME (Myalgic Encephalomyelitis) community as we come together to observe Severe ME Day. This year, the focus is on #EndMalnutritionInME, shedding…


Our members

Our member organisations are fighting for people with ME across the globe. Here’s a few of the organisations collaborating with us, but you can view all of them here.

12ME

12ME

Forward M.E.

Forward M.E.

European ME Coalition

European ME Coalition

Neúnavní

Neúnavní

Solve M.E.

Solve M.E.

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

WAMES – Welsh Association of ME & CFS Support

WAMES – Welsh Association of ME & CFS Support

Action for M.E.

Action for M.E.