Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

27 member organisations

in 20 countries

and growing


Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?


Latest News From Our Members

“I don’t look sick. But I am sick.” – Kelly, USA

“I don’t look sick. But I am sick.” – Kelly, USA

Name: Kelly Sullivan Ruta Pronouns: she/her Age: 52 Home: Wake Forest, USA How many years sick?: 9 My illness was originally triggered by an Epstein-Barr infection. Prior to getting COVID,…

“People have no idea what Severe ME is like” – Nevra, Pakistan

“People have no idea what Severe ME is like” – Nevra, Pakistan

Name: Nevra Elis Ahmed Pronouns: she/her Age: 28 Home: Karachi, Pakistan How many years sick?: 22 Nevra had to abandon answering questions because it exhausted her too much. Her story…

“Building a community saved my life” – Daniela, Mexico

“Building a community saved my life” – Daniela, Mexico

Name: Daniela Herrera Villarreal Pronouns: she/her Age: 38 Home: Mexico City Sick for: 6 years I have a genetic syndrome, Charcot Marie Tooth, whose symptoms worsened after two simultaneous infections,…


Our members

Our member organisations are fighting for people with ME across the globe. Here’s a few of the organisations collaborating with us, but you can view all of them here.

European ME Coalition

European ME Coalition

ME/CFS Israel

ME/CFS Israel

ME CVS Nederland

ME CVS Nederland

ACAF

ACAF

Millions Missing France

Millions Missing France

Neúnavní

Neúnavní

AQEM – Association québécoise de l’encéphalomyélite myalgique

AQEM – Association québécoise de l’encéphalomyélite myalgique

Plataforma Familiars FM-SFC-SQM Síndromes de Sensibilització Central

Plataforma Familiars FM-SFC-SQM Síndromes de Sensibilització Central