Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

28 member organisations

in 21 countries

and growing


Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?


Latest News From Our Members

CLOSED TO NEW APPLICANTS** We’re recruiting a new Head of Advocacy and Comms

CLOSED TO NEW APPLICANTS** We’re recruiting a new Head of Advocacy and Comms

We are no longer accepting applications for this role. Thank you for your interest. We’re recruiting a new Head of Advocacy and Communications for the World ME Alliance. Might you…

New Clinician Resource Guide Published for Severe ME Day 2025

New Clinician Resource Guide Published for Severe ME Day 2025

Ahead of this Severe ME Day — August 8th — the World ME Alliance is proud to launch a vital new publication: Supporting People with Severe and Very Severe ME/CFS:…

ABEMDIS joins the World ME Alliance – growing advocacy in Brazil

ABEMDIS joins the World ME Alliance – growing advocacy in Brazil

The World ME Alliance is excited to announce the inclusion of our newest member organization, ABEMDIS – Brazilian Association for Myalgic Encephalomyelitis and Dysautonomia. This vibrant, committed organization grew from…


Our members

Our member organisations are fighting for people with ME across the globe. Here’s a few of the organisations collaborating with us, but you can view all of them here.

Emerge Australia

Emerge Australia

Japan ME Association

Japan ME Association

WAMES – Welsh Association of ME & CFS Support

WAMES – Welsh Association of ME & CFS Support

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

ABEMDIS

ABEMDIS

Millions Missing Belgique

Millions Missing Belgique

Solve M.E.

Solve M.E.

Millions Missing Mexico

Millions Missing Mexico