Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

19 member organisations

in 12 countries

and growing


Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?


Latest News From Our Members

Could you be our new Communications Volunteer in 2023? Apply today.

Could you be our new Communications Volunteer in 2023? Apply today.

We’re looking for a new volunteer to support the World ME Alliance in growing our social media presence and helping with our website. Are you looking for something new and…

On World AIDS Day, We’re Taking Action at the White House

On World AIDS Day, We’re Taking Action at the White House

MEAction is headed back to the White House for another BOLD ACTION on December 1st at 12pm ET for World AIDS Day. Join us virtually—or on-site if you’re able—for an…

Solve Ramsay Grant Scientists Among Those Awarded Nearly $5 Million for Biomedical Research

Solve Ramsay Grant Scientists Among Those Awarded Nearly $5 Million for Biomedical Research

This week the Patient-Led Research Collaborative (PLRC) announced $4.8 million in biomedical research awards for Long Covid and associated conditions. ine research projects in Long Covid, ME/CFS, dysautonomia, and associated…


Our members

Our member organisations are fighting for people with ME across the globe. Here’s a few of the organisations collaborating with us, but you can view all of them here.

ME Support (IOM)

ME Support (IOM)

ME/CVS Stichting Nederland

ME/CVS Stichting Nederland

Solve M.E.

Solve M.E.

12ME

12ME

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

The ME CFS Foundation South Africa

The ME CFS Foundation South Africa

#MEAction

#MEAction

Millions Missing Belgique

Millions Missing Belgique