Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

26 member organisations

in 19 countries

and growing


Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?


Latest News From Our Members

A #GlobalVoiceForME: World ME Day 2024 theme announced

A #GlobalVoiceForME: World ME Day 2024 theme announced

In recognition of World ME Day on May 12th 2024, our global community comes together to raise awareness about the pressing issues surrounding Myalgic Encephalomyelitis (ME). This year marks the…

Emerge Australia joins the World ME Alliance: Pioneering Global Partnerships for ME/CFS

Emerge Australia joins the World ME Alliance: Pioneering Global Partnerships for ME/CFS

In a move that underscores their commitment to championing the cause of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID on an international scale, Emerge Australia has joined the World…

Portugal’s first international conference on Clinical and Scientific Advances in ME/CFS/Post-COVID

Portugal’s first international conference on Clinical and Scientific Advances in ME/CFS/Post-COVID

Date: 3rd-4th April 2024 Location: FLAD Luso American Development Foundation, Lisbon This event, the first in Portugal, will gath- er leading scientists, clinicians, and inter- national experts to share and…


Our members

Our member organisations are fighting for people with ME across the globe. Here’s a few of the organisations collaborating with us, but you can view all of them here.

European ME Coalition

European ME Coalition

ACAF

ACAF

Solve M.E.

Solve M.E.

Forward M.E.

Forward M.E.

Millions Missing Canada

Millions Missing Canada

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

MYOS

MYOS

#MEAction

#MEAction