Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

11 member organisations

in 6 countries

and growing

Our Purpose

A world without ME/CFS


A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.


The pooling, sharing, and dissemination of advocacy and communication of resources.


The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?

Latest News From Our Members

Llais Niwro/Neuro Voices Project – join a support group

Neuro Voices Wales – Support Groups The Wales Neurological Alliance invites anyone with a neurological condition, including ME & FM, to attend one of the new neuro support groups… News…

2021: That Was The Year That Was

Last year was, by all accounts, a doozy. The nation endured a spate of tornadoes, fires, floods and, of course… News and Research – American ME and CFS Society Read…

After Vaccination, Health of People with ME/CFS More Likely to Worsen Compared to Controls

In survey, 19% of people with ME/CFS said health worsened after vaccination compared to 4% reported by controls. A recent survey conducted by our You + ME Registry found that the health……