Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) oeganisations across the globe. Could your national organisation benefit from international support?

15 member organisations

in 9 countries

and growing

Our Purpose

A world without ME/CFS


A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.


The pooling, sharing, and dissemination of advocacy and communication of resources.


The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?

Latest News From Our Members

World ME Day 2022 roundup

World ME Day 2022 roundup

After an incredible World ME Day we wanted to share some of the amazing progress made across the globe. As individuals and organisations, our community stepped forward to fight for…

World ME Day posters show what we can #LearnFromME

World ME Day posters show what we can #LearnFromME

This World ME Day we asked our community to customise poster to demonstrate what we should all #LearnFromME. The profound loss endured by people with ME comes through, alongside the…

Research alerts this World ME Day

Research alerts this World ME Day

We know there isn’t enough research into ME happening around the world, but there is some and we’re highlighting a few projects you might be able participate in. All of…