Our members

We are the only global network of ME organisations.

All of our members share a belief that the challenges in ME are worldwide, and the solutions must be too. We can be more effective and efficient by sharing our experiences and speaking with one voice.

#MEAction

#MEAction

Founding Member #MEAction is an international network of patients fighting for health equality for ME by building community and mobilizing patients, families, and allies. We were founded with the belief…

12ME

12ME

Member 12ME is a Belgian non-profit association that wants to draw attention to the seriousness of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) with a positive story. In doing so,…

ACAF

ACAF

Founding Member ACAF (Associació Catalana d’Afectades i Afectats de Fibromiàlgia i d’altres Síndromes de Sensibilització Central) is a mutual help association formed by people affected by Central Sensitization Syndromes (CFS/ME…

Action for M.E.

Action for M.E.

Founding Member Our mission is empowering people with M.E. to fulfil their potential and secure the care and support they need, while working towards a greater understanding of the illness…

AMMES – The American ME and CFS Society

AMMES – The American ME and CFS Society

Founding Member The American ME and CFS Society is dedicated to serving the needs of patients and caregivers through support, advocacy, and education. We seek to channel patient perspectives to…

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

Founding Member The Associated New Zealand Myalgic Encephalomyelitis Society (ANZMES) has been serving New Zealanders with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome since 1980. They provide information, support and practical…

AQEM – Association québécoise de l’encéphalomyélite myalgique

AQEM – Association québécoise de l’encéphalomyélite myalgique

Founding Member Our mission is to promote awareness and recognition of myalgic encephalomyelitis (a disease also known as chronic fatigue syndrome), to help those affected and to help promote research.…

CFS/ME Associazione Italiana

CFS/ME Associazione Italiana

Member The CFS/ME Associazione Italiana is a small organisation working to ensure people with ME in Italy have access to information about their disease from across the world.  The organisation…

European ME Coalition

European ME Coalition

Member The European ME Coalition (EMEC) is was founded in 2018 by a group of patients with a strong desire to improve the lives of people with ME in Europe…

Forward M.E.

Forward M.E.

Founding Member The ME community in the UK is served by a considerable range of charities, with even the largest being relatively small. Recognising the benefit of being able to…

Hope 4 ME & Fibro Northern Ireland

Hope 4 ME & Fibro Northern Ireland

Member Hope 4 ME & Fibromyalgia Northern Ireland is a registered charity run by patients and volunteers. Founded in 2011, they have grown from strength to strength, achieving charitable status…

Plataforma Familiars FM-SFC-SQM Síndromes de Sensibilització Central

Plataforma Familiars FM-SFC-SQM Síndromes de Sensibilització Central

Founding Member We want to help society visualize, understand and comprehend the real situation of affected patients. However, relatives also suffer. They often find themselves alone in the face of…

Solve M.E.

Solve M.E.

Founding Member The Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome…

The ME CFS Foundation South Africa

The ME CFS Foundation South Africa

Founding Member The ME CFS Foundation South Africa is the first entity of its kind in South Africa (and Africa) founded in response to ME/CFS. We provide healthcare and counselling…

WAMES – Welsh Association of ME & CFS Support

WAMES – Welsh Association of ME & CFS Support

Founding Member Working for ME in Wales Our vision is for a Wales where adults and children with ME, CFS and PVFS and their carers are taken seriously and treated…