People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge…

Welsh Government Charter for unpaid Carers This Charter for Unpaid Carers sets out the legal rights of unpaid carers in Wales under the Social Services and Well-being (Wales) Act 2014.…

Sometimes being in a small place can enable a level of advocacy and engagement in political landscapes that is harder in large countries. This is absolutely the case for the…

Earlier this month #MEAction collaborated with Patient-Led Research Collaborative (PLRC) to suggest changes that the U.S. Department of Labor (DOL) should make in order to better track disability due to…

What is a suitable model for social prescribing in Wales?   The Welsh Government want to develop a national framework for social prescribing and is asking Welsh residents to comment.…

Welcome to August’s Facets of ME! If you are unfamiliar, #FacetsOfME is a new #MEAction feature this year where we take time to explore one facet or aspect of myalgic…

IACFS/ME’s 15th Medical/ Scientific Conference 27-30 July 2022   If you missed out on this large conference organised by the The International Association for CFS/ME (IACFS/ME) you can now watch…

This month, ME/CVS Stichting Nederland joined the World ME Alliance as a member. This Dutch organisation has been advocating for people with ME since 1987, and has a variety of…

In April, President Biden issued a Presidential Memorandum directing the Secretary of Health and Human Services (HHS) to coordinate a new effort across the federal government to develop and issue……

The electronic version of our flagship research and advocacy journal, The Chronicle, has arrived! It includes a celebration of our Long Haul Voices: Living with Long Covid and ME/CFS video……

On the 12 May, World ME Day, the former Secretary of State for Health and Social Care, Sajid Javid, announced the Government’s intention to develop a cross-Government Delivery Plan on…

DHSC Delivery Plan on ME/CFS development strategy   The Department for Health & Social Care (DHSC) in England has laid out the way they intend to develop the “cross-Government Delivery…

All are welcome to attend Action for M.E.’s 2022 Annual General Meeting (AGM) where you can meet Action for M.E. staff and Trustees and hear how we’ve worked with and…

This consultation seeks feedback on suggested media advice for journalists reporting on M.E. and developing a helpful handbook of best practices for distribution to media outlets. The purpose of this…

Ingebjørg Midsem Dahl was born in 1979 in Oslo, Norway, where she still lives. She came down with ME acutely in 1983. Ingebjørg has done written information work for major……

Today (17 August), the Department for Health and Social Care has published further information about the cross-government Delivery Plan on M.E./CFS, which was announced by the Government… This post appeared…

We are proud to announce that Millions Missing Canada is joining our Alliance. This organisation was born out of the Millions Missing movement founded and run by #MEAction. It was…

Creatieve infomarkt te Gent (11/09/2022) Graag nodigen we jullie op zondag 11 september uit op een creatief en informatief minimarktje van 12ME. Van 11.00 tot 17.00 uur vind je ons aan…

Powys Health Board [in Wales] say they are committed to using NICE guidance. WAMES has been asking Health Boards in Wales what plans they have to implement the new NICE…

It’s been more than two years since we launched the You + ME Registry and we’re thrilled to have over 6,500 people contributing data to the community. We also have……

We are excited to announce a new program being introduced by Solve M.E. and invite our community play an important part in its roll out. Solve M.E. is on the…

As the UK approaches an unprecedented energy crisis this Winter, the National Energy Action predicts that 8.7 million UK households will be in fuel poverty. This is double the 4.5…

A collection of works by artists with severe ME. #MEAction is excited to announce our Severe ME Artist Project 2022— Gallery! The Severe ME Artist Project 2022 features work from…

Caroline Kingdon, RN, MSc, is a research nurse for CureME, an organization at the forefront of participatory epidemiological, clinical and laboratory research into ME/CFS in the UK. She is also……

Registration is now open. Earlier this month we shared an exciting save the date. We now have the date of Wednesday 14th September for our ME Genetics Research Symposium. It…

Each year on August 8, Severe M.E. Day, we reflect on the tremendous toll this devastating disease takes on individuals suffering from severe ME/CFS symptoms and remember the lives of……

Severe ME Day takes place every year on August 8th. It is considered a day for remembrance of those who suffer from and have died from severe myalgic encephalomyelitis (ME),…

#MEAction is excited to share a new and much-needed resource just in time for back to school! We are so thankful to have our allies at Long Covid Families join…

– no endorsement for Lightning Process for ME The Associated New Zealand Myalgic Encephalomyelitis Society (ANZMES) supports the new position paper on the Lightning Process by the World ME Alliance…

The World ME Alliance and its members have worked closely over the past few months to reach a collective position on the Lightning Process.  The Lightning Process is a commercial…

My Neuro survey Wales report 2022 from the WNA   Whilst we are cognisant that the pandemic has brought with it unprecedented demand on all health and social services, two…

Solve M.E. is pleased to announce that TaKeisha S. Walker recently joined us as chief operating officer. In this newly-created role reporting to CEO Oved Amitay, TaKeisha will lead Solve’s…

As we announced in February, the Scottish Government has committed to implementing the new NICE guideline for diagnosis and management of ME. The first step in the process was a…

The MELN was set up in 2021 to bring together ME friendship and support groups across the UK. The aims of the MELN are: To create a national network of…

House Holds Hearing on “Understanding and Addressing Long Covid”  This week, the Select Subcommittee on the Coronavirus Crisis held a hearing on understanding and addressing Long Covid and its consequences.…

The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum…

Bestel je eigen 12ME T-shirt. We zijn bijzonder trots om onze eigen 12ME T-shirts voor te stellen!Het shirt is koningsblauw met ons logo groot in het midden bedrukt. De maten…

As part of #DisabilityPrideMonth, The Century Foundation’s podcast Off-Kilter has been hosting a series of conversations featuring Disability Economic Justice Collaborative* members and other leaders from the disability community. #MEAction…