In a move that underscores their commitment to championing the cause of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID on an international scale, Emerge Australia has joined the World…

Date: 3rd-4th April 2024 Location: FLAD Luso American Development Foundation, Lisbon This event, the first in Portugal, will gath- er leading scientists, clinicians, and inter- national experts to share and…

Future pandemic preparedness will fail millions without explicit recognition of and research into infection associate chronic conditions. On 20th September 2023, the United Nations General Assembly adopted a Political Declaration…

We are excited to welcome MYOS (Associação Nacional Contra a Fibromialgia e Síndrome de Fadiga Crónica) as the newest member of the World ME Alliance and the first organisation from…

Leaders in the ME community from across the globe joined in writing a rapid response to the July 2023 article titled “Anomalies in the review process and interpretation of the…

August 8th marks an important day for the global ME (Myalgic Encephalomyelitis) community as we come together to observe Severe ME Day. This year, the focus is on #EndMalnutritionInME, shedding…

From 2022 to 2023 the World ME Alliance grew from 13 member organisations to 21. We are pleased to share with you the World ME Alliance’s Annual Report for 2022-2023.…

On 11th July, a new article was published in the Journal of Neurology, Neurosurgery and Psychiatry purporting to demonstrate flaws in the NICE ME/CFS guideline review process. The World ME…

We are delighted to announce that the World ME Alliance has expanded its new resource, “Involving people with ME and energy limiting conditions” to include German and Italian translations, alongside…

The World ME Alliance, a global coalition of organisations advocating for those affected by Myalgic Encephalomyelitis (ME), is proud to announce the release of a new guide. This comprehensive resource,…

ME/CFS Israel, a pioneering organisation dedicated to raising awareness and providing accurate information on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), has achieved remarkable milestones within just a year since its foundation.…

We are thrilled to announce the newest member of the World ME Alliance: Neúnavní. This Czech charity is dedicated to supporting individuals living with Myalgic Encephalomyelitis (ME) in the Czech…

Myalgic Encephalomyelitis (ME) is a debilitating and complex condition that affects millions of people across the globe. On May 12th, World ME Day is observed to raise awareness of this…

World ME Day takes place on May 12th to raise awareness of myalgic encephalomyelitis (ME), a debilitating and often misunderstood illness. This year, organizations from around the world have come…

Final call-to-action for World ME Day 2023. Follow Holly’s example and tell the world what happens when pushing harder makes you sicker for World ME Day. ME, or Myalgic Encephalomyelitis,…

Share the reality of how pushing harder can make you sicker. The WOrld ME Alliance and it’s members are calling on all people with ME and carers to demonstrate the…

We are excited to announce the launch of our new factsheet on myalgic encephalomyelitis (ME), with a particular focus on post-exertional malaise (PEM). Available in four languages, we hope this…

To mark World Health Day, and with just over one month to go until World ME Day, we are launching our next resource! Are you interested in helping to raise…

As we approach World ME Day on May 12th, the World ME Alliance is excited to announce the launch of six new graphics that explore different aspects of post-exertional malaise…

Following our letter to the World Health Organization (WHO) highlighting critical gaps in their “Global report on health equity for persons with disabilities”, we have met with officials to discuss…

The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people begin to…

On the 2nd December 2022, the World Health Organization (WHO) published an important global report on health equity for persons with disabilities. The report is based upon the principle that…

As we begin 2023, we are proud to announce the Japan ME Association is joining our World ME Alliance. We are hopeful that this will be a fruitful relationship, extending…

It’s hard to believe that we’re well into the third year of the COVID-19 pandemic, which coincidentally overlaps with my time as Solve M.E.’s President and CEO. In this time……

With great excitement, we announce our 20th member, and yet another country joining our ranks! Today Millions Missing France officially joins our Alliance, providing yet more global reach and we…

La luminothérapie, ça mange quoi en hiver? La luminothérapie consiste à s’exposer à de la lumière artificielle projetée par une lampe (qui n’émet aucun rayon UV) un certain nombre de…

Building on our commitment to centering the crucial voices from our community in the leadership and decision-making at Solve M.E., we are transforming our Community Advisory Council (2019 – 2022)…

Nous avons le privilège de collaborer avec Mélanie Kasner sur plusieurs projets depuis les derniers mois. Nous souhaitions vous la présenter davantage en quelques lignes. Mélanie a complété son baccalauréat…

On Thursday, December 1st, World AIDS Day, HIV/AIDS, ME/CFS and Long COVID activists are taking action at the White House to demand funding for critical global and domestic health measures…

Le syndrome de tachycardie orthostatique posturale est un trouble multisystémique chronique dont le symptôme cardinal est une tachycardie orthostatique. Appelé Postural Orthostatic Tachycardia Syndrome en anglais, les termes POTS ou…

Op dinsdag 29 november, ‘Giving Tuesday’, doneren we 10.000 euro aan de Amerikaanse ngo Open Medicine Foundation (OMF). Hiermee willen we het wetenschappelijk onderzoek naar myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) ondersteunen…

We’re looking for a new volunteer to support the World ME Alliance in growing our social media presence and helping with our website. Are you looking for something new and…

MEAction is headed back to the White House for another BOLD ACTION on December 1st at 12pm ET for World AIDS Day. Join us virtually—or on-site if you’re able—for an…

This week the Patient-Led Research Collaborative (PLRC) announced $4.8 million in biomedical research awards for Long Covid and associated conditions. ine research projects in Long Covid, ME/CFS, dysautonomia, and associated…

Caring costs: Carers Rights day Caring Costs in so many ways. It could be the cost to unpaid carers’ wellbeing and ability to access health services. Sometimes it’s the financial…

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H…

BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and passive—commitment to seeing healthcare justice for people with ME. It is…

Een hart voor ME 2022 Voor het 5e jaar op rij verkoopt 12ME verse hartenwafeltjes om het wetenschappelijk onderzoek naar de ziekte myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) een duwtje in de…