The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people begin to…

On the 2nd December 2022, the World Health Organization (WHO) published an important global report on health equity for persons with disabilities. The report is based upon the principle that…

As we begin 2023, we are proud to announce the Japan ME Association is joining our World ME Alliance. We are hopeful that this will be a fruitful relationship, extending…

It’s hard to believe that we’re well into the third year of the COVID-19 pandemic, which coincidentally overlaps with my time as Solve M.E.’s President and CEO. In this time……

With great excitement, we announce our 20th member, and yet another country joining our ranks! Today Millions Missing France officially joins our Alliance, providing yet more global reach and we…

La luminothérapie, ça mange quoi en hiver? La luminothérapie consiste à s’exposer à de la lumière artificielle projetée par une lampe (qui n’émet aucun rayon UV) un certain nombre de…

Building on our commitment to centering the crucial voices from our community in the leadership and decision-making at Solve M.E., we are transforming our Community Advisory Council (2019 – 2022)…

Nous avons le privilège de collaborer avec Mélanie Kasner sur plusieurs projets depuis les derniers mois. Nous souhaitions vous la présenter davantage en quelques lignes. Mélanie a complété son baccalauréat…

On Thursday, December 1st, World AIDS Day, HIV/AIDS, ME/CFS and Long COVID activists are taking action at the White House to demand funding for critical global and domestic health measures…

Le syndrome de tachycardie orthostatique posturale est un trouble multisystémique chronique dont le symptôme cardinal est une tachycardie orthostatique. Appelé Postural Orthostatic Tachycardia Syndrome en anglais, les termes POTS ou…

Op dinsdag 29 november, ‘Giving Tuesday’, doneren we 10.000 euro aan de Amerikaanse ngo Open Medicine Foundation (OMF). Hiermee willen we het wetenschappelijk onderzoek naar myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) ondersteunen…

We’re looking for a new volunteer to support the World ME Alliance in growing our social media presence and helping with our website. Are you looking for something new and…

MEAction is headed back to the White House for another BOLD ACTION on December 1st at 12pm ET for World AIDS Day. Join us virtually—or on-site if you’re able—for an…

This week the Patient-Led Research Collaborative (PLRC) announced $4.8 million in biomedical research awards for Long Covid and associated conditions. ine research projects in Long Covid, ME/CFS, dysautonomia, and associated…

Caring costs: Carers Rights day Caring Costs in so many ways. It could be the cost to unpaid carers’ wellbeing and ability to access health services. Sometimes it’s the financial…

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H…

BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and passive—commitment to seeing healthcare justice for people with ME. It is…

Een hart voor ME 2022 Voor het 5e jaar op rij verkoopt 12ME verse hartenwafeltjes om het wetenschappelijk onderzoek naar de ziekte myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) een duwtje in de…

We welcome measures in the Chancellor’s Autumn statement to support disabled people with additional cost of living pressures. However, while these measures go some way to recognising… This post appeared…

Caroline Kingdon’s new paper on the NICE guideline for ME was co-written with #MEAction UK volunteer Adam Lowe, as well as Charles Shepherd of the ME Association and Luis Nacul…

ANZMES has made this PDF version available to those who wish to download for their own use. IACFS conference 2022 combined report Download This post appeared first on ANZMES. Read…

Nieuw ME/CVS-onderzoek in Duitsland Hoopvol nieuws voor patiënten met myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS). In Duitsland investeert de overheid 10 miljoen in een nieuw netwerk dat medicijnen gaat testen voor ME/CVS.…

The article published in NY Magazine on Nov 4, 2022, “Has Long COVID Always Existed? The pandemic might not have spawned a new chronic illness but rebranded an old one,”…

New York Magazine’s Intelligencer published an fallacious article last week about Long COVID and ME/CFS in which the author, Jeff Wise, paternalistically argues that graded exercise therapy (GET) and cognitive…

Solve M.E. supports research into the underlying causes of ME/CFS and Long Covid through the Ramsay Research Grant Program, an open, peer-reviewed competition for grants to support pilot studies and…

Today, Action for M.E. has joined leading Neurological charities to write a letter to Jeremy Hunt, Chancellor of the Exchequer, about how the cost of living crisis is having a…

WAMES e-news Sign up for the latest news from WAMES, straight to your inbox. Read about: the activities of WAMES what is happening in Wales of interest to people with…

Taking BOLD ACTION with our press outreach has led to national media writing about ME. Nothing says BOLD ACTION like our press work. We are working daily to cultivate relationships…

ANZMES President Fiona Charlton speaks to journalist Dewi Preece about the impact of ME/CFS in her life and the lives of many New Zealanders living with this debilitating illness, and…

Get Christmassy and creative however you like, whether it’s a drawing, painting, collage, photograph or even a cross-stitch. Your design can be of anything, as long as it fits within…

In February 2022, a group of Members of the European Parliament (MEPs) headed by Pascal Arimont wrote several letters on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the European Commission. This…

Doctors’ attitudes to medical conditions. On an online medical forum physicians were found to discuss ME/CFS, depression and Lyme disease with more negative language than 21 other diseases. The results…

#MillionsMissing France has been busy. This month, in tandem with Adapted Physical Activity Expert Gilles Thöni, the association addressed the French National Authority for Health (HAS) requesting, as they have…

Last week, two standout members of our community — Dr. Peter Rowe and Cynthia Adinig — participated in a satellite media tour (SMT) with 27 different TV and radio stations…

On 13 October 2022, the German Institute for Quality and Efficiency in Health Care (IQWiG) published its draft report on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This report was commissioned two…

Our Alliance continues to grow, and today we are announcing Millions Missing Belgique as our newest member. This organisation was born out of the Millions Missing movement founded and run…

Give donations ‘In lieu of gifts’ – to aid our #WAMES_8oo Fundraising Journey   Why not celebrate your next special occasion by asking your friends and family to lend support…

The ANZMES petition to reclassify ME/CFS as a disability was read in parliament at 2pm Tuesday 20th September 2022. It is now with the select committee, and ANZMES will provide…