News

The world’s ME news, all in one place. Check out the headlines from organisations working to benefit people with ME all across the world.

2023 World ME Day campaign announced

2023 World ME Day campaign announced

The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people begin to…

Highlighting critical gaps in the WHO “Global report on health equity for persons with disabilities”

Highlighting critical gaps in the WHO “Global report on health equity for persons with disabilities”

On the 2nd December 2022, the World Health Organization (WHO) published an important global report on health equity for persons with disabilities. The report is based upon the principle that…

Japan ME Association joins the World ME Alliance

Japan ME Association joins the World ME Alliance

As we begin 2023, we are proud to announce the Japan ME Association is joining our World ME Alliance. We are hopeful that this will be a fruitful relationship, extending…

An Evolving Landscape: Long Covid’s Impact on ME/CFS

It’s hard to believe that we’re well into the third year of the COVID-19 pandemic, which coincidentally overlaps with my time as Solve M.E.’s President and CEO. In this time……

Millions Missing France joins the World ME Alliance

Millions Missing France joins the World ME Alliance

With great excitement, we announce our 20th member, and yet another country joining our ranks! Today Millions Missing France officially joins our Alliance, providing yet more global reach and we…

La luminothérapie et le changement de saison

La luminothérapie, ça mange quoi en hiver? La luminothérapie consiste à s’exposer à de la lumière artificielle projetée par une lampe (qui n’émet aucun rayon UV) un certain nombre de…

Solve M.E. Engages New Community Partners Through Lived Experience Taskforce (LET)

Building on our commitment to centering the crucial voices from our community in the leadership and decision-making at Solve M.E., we are transforming our Community Advisory Council (2019 – 2022)…

Portrait de l’ergothérapeute Mélanie Kasner

Nous avons le privilège de collaborer avec Mélanie Kasner sur plusieurs projets depuis les derniers mois. Nous souhaitions vous la présenter davantage en quelques lignes. Mélanie a complété son baccalauréat…

Take Action Virtually with our White House Protest

On Thursday, December 1st, World AIDS Day, HIV/AIDS, ME/CFS and Long COVID activists are taking action at the White House to demand funding for critical global and domestic health measures…

Qu’est-ce que le POTS (syndrome de tachycardie orthostatique posturale)?

Qu’est-ce que le POTS (syndrome de tachycardie orthostatique posturale)?

Le syndrome de tachycardie orthostatique posturale est un trouble multisystémique chronique dont le symptôme cardinal est une tachycardie orthostatique. Appelé Postural Orthostatic Tachycardia Syndrome en anglais, les termes POTS ou…

12ME doneert 10.000 euro aan OMF

12ME doneert 10.000 euro aan OMF

Op dinsdag 29 november, ‘Giving Tuesday’, doneren we 10.000 euro aan de Amerikaanse ngo Open Medicine Foundation (OMF). Hiermee willen we het wetenschappelijk onderzoek naar myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) ondersteunen…

Could you be our new Communications Volunteer in 2023? Apply today.

Could you be our new Communications Volunteer in 2023? Apply today.

We’re looking for a new volunteer to support the World ME Alliance in growing our social media presence and helping with our website. Are you looking for something new and…

On World AIDS Day, We’re Taking Action at the White House

On World AIDS Day, We’re Taking Action at the White House

MEAction is headed back to the White House for another BOLD ACTION on December 1st at 12pm ET for World AIDS Day. Join us virtually—or on-site if you’re able—for an…

Solve Ramsay Grant Scientists Among Those Awarded Nearly $5 Million for Biomedical Research

Solve Ramsay Grant Scientists Among Those Awarded Nearly $5 Million for Biomedical Research

This week the Patient-Led Research Collaborative (PLRC) announced $4.8 million in biomedical research awards for Long Covid and associated conditions. ine research projects in Long Covid, ME/CFS, dysautonomia, and associated…

Carers rights day 24 Nov 2022 – Caring costs

Caring costs: Carers Rights day Caring Costs in so many ways. It could be the cost to unpaid carers’ wellbeing and ability to access health services. Sometimes it’s the financial…

Infection-associated chronic disease experts needed at ARPA-H

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H…

BOLD ACTION is a Commitment to Healthcare Justice for People with ME

BOLD ACTION is a Commitment to Healthcare Justice for People with ME

BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and passive—commitment to seeing healthcare justice for people with ME. It is…

Een hart voor ME 2022

Een hart voor ME 2022

Een hart voor ME 2022 Voor het 5e jaar op rij verkoopt 12ME verse hartenwafeltjes om het wetenschappelijk onderzoek naar de ziekte myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) een duwtje in de…

Cost of Living Crisis Statement

We welcome measures in the Chancellor’s Autumn statement to support disabled people with additional cost of living pressures. However, while these measures go some way to recognising… This post appeared…

What Primary Care practitioners need to know about the new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome in adults

Caroline Kingdon’s new paper on the NICE guideline for ME was co-written with #MEAction UK volunteer Adam Lowe, as well as Charles Shepherd of the ME Association and Luis Nacul…

Notes from the IACFS conference 2022

ANZMES has made this PDF version available to those who wish to download for their own use. IACFS conference 2022 combined report Download This post appeared first on ANZMES. Read…

Nieuw ME/CVS-onderzoek in Duitsland

Nieuw ME/CVS-onderzoek in Duitsland

Nieuw ME/CVS-onderzoek in Duitsland Hoopvol nieuws voor patiënten met myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS). In Duitsland investeert de overheid 10 miljoen in een nieuw netwerk dat medicijnen gaat testen voor ME/CVS.…

Solve M.E. & Community Partners Denounce Misleading New York Magazine Article

The article published in NY Magazine on Nov 4, 2022, “Has Long COVID Always Existed? The pandemic might not have spawned a new chronic illness but rebranded an old one,”…

#MEAction Response to NY Magazine’s Egregious Article on ME and Long COVID

New York Magazine’s Intelligencer published an fallacious article last week about Long COVID and ME/CFS in which the author, Jeff Wise, paternalistically argues that graded exercise therapy (GET) and cognitive…

Solve M.E. Ramsay Researchers Make Strides in Understanding Immune System Reactions that Lead to Chronic Diseases

Solve M.E. supports research into the underlying causes of ME/CFS and Long Covid through the Ramsay Research Grant Program, an open, peer-reviewed competition for grants to support pilot studies and…

Leading Neurological Charities Write to Jeremy Hunt

Today, Action for M.E. has joined leading Neurological charities to write a letter to Jeremy Hunt, Chancellor of the Exchequer, about how the cost of living crisis is having a…

Sign up for regular news from WAMES

WAMES e-news Sign up for the latest news from WAMES, straight to your inbox. Read about: the activities of WAMES what is happening in Wales of interest to people with…

#MEAction’s BOLD Press Strategy Leads to BIG Press Payoff!

#MEAction’s BOLD Press Strategy Leads to BIG Press Payoff!

Taking BOLD ACTION with our press outreach has led to national media writing about ME. Nothing says BOLD ACTION like our press work. We are working daily to cultivate relationships…

ANZMES President speaks to One News

ANZMES President Fiona Charlton speaks to journalist Dewi Preece about the impact of ME/CFS in her life and the lives of many New Zealanders living with this debilitating illness, and…

Action for M.E.’S Christmas e-Card Design Competition is back!

Get Christmassy and creative however you like, whether it’s a drawing, painting, collage, photograph or even a cross-stitch. Your design can be of anything, as long as it fits within…

A new response from the EU Commission

A new response from the EU Commission

In February 2022, a group of Members of the European Parliament (MEPs) headed by Pascal Arimont wrote several letters on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the European Commission. This…

Doctors use more negative language about ME/CFS online than other illnesses

Doctors’ attitudes to medical conditions. On an online medical forum physicians were found to discuss ME/CFS, depression and Lyme disease with more negative language than 21 other diseases. The results…

#MillionsMissing France: Rally in Bourges, Interview with Ms. Chantal Somm

#MillionsMissing France: Rally in Bourges, Interview with Ms. Chantal Somm

#MillionsMissing France has been busy. This month, in tandem with Adapted Physical Activity Expert Gilles Thöni, the association addressed the French National Authority for Health (HAS) requesting, as they have…

Solve M.E. Experts Join National Media Tour to Raise Awareness of Long Covid, ME/CFS, and Post-Infection Diseases

Solve M.E. Experts Join National Media Tour to Raise Awareness of Long Covid, ME/CFS, and Post-Infection Diseases

Last week, two standout members of our community — Dr. Peter Rowe and Cynthia Adinig — participated in a satellite media tour (SMT) with 27 different TV and radio stations…

The IQWiG report on ME/CFS in Germany

The IQWiG report on ME/CFS in Germany

On 13 October 2022, the German Institute for Quality and Efficiency in Health Care (IQWiG) published its draft report on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This report was commissioned two…

Millions Missing Belgique joins the World ME Alliance

Millions Missing Belgique joins the World ME Alliance

Our Alliance continues to grow, and today we are announcing Millions Missing Belgique as our newest member. This organisation was born out of the Millions Missing movement founded and run…

#WAMES_800 – Donations ‘In lieu of gifts’

Give donations ‘In lieu of gifts’ – to aid our #WAMES_8oo Fundraising Journey   Why not celebrate your next special occasion by asking your friends and family to lend support…

New Zealand Petition read today

New Zealand Petition read today

The ANZMES petition to reclassify ME/CFS as a disability was read in parliament at 2pm Tuesday 20th September 2022. It is now with the select committee, and ANZMES will provide…