News

The world’s ME news, all in one place. Check out the headlines from organisations working to benefit people with ME all across the world.

World ME Day 2022 roundup

World ME Day 2022 roundup

After an incredible World ME Day we wanted to share some of the amazing progress made across the globe. As individuals and organisations, our community stepped forward to fight for…

World ME Day posters show what we can #LearnFromME

World ME Day posters show what we can #LearnFromME

This World ME Day we asked our community to customise poster to demonstrate what we should all #LearnFromME. The profound loss endured by people with ME comes through, alongside the…

Research alerts this World ME Day

Research alerts this World ME Day

We know there isn’t enough research into ME happening around the world, but there is some and we’re highlighting a few projects you might be able participate in. All of…

What’s happening around the globe for World ME Day? Part 2

What’s happening around the globe for World ME Day? Part 2

It’s almost World ME Day (12th May) and we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in Spain, Belgium, the USA, the…

Take Action! What should the world #LearnFromME?

Take Action! What should the world #LearnFromME?

There is only a week to go until World ME Day on the 12th of May, and as part of this year’s theme, #LearnFromME, we have released a series of…

#MEAction Meets with the Department of Labor

#MEAction continues our advocacy for the #MillionsMissing in a recent meeting with the Office of Disability Employment Policy (ODEP) at the U.S. Department of Labor (DOL) where we presented on…

Call-to-action for California: Centers of Excellence

We have a golden opportunity to secure substantial funds to address the clinical care crisis in ME/CFS and Long COVID, but your help is needed NOW. #MEAction and the Patient-Led Research…

Solve M.E Kicks Off Advocacy Month Highlighting Long Covid’s Widespread Impact, Spotlight on ME/CFS

Advocacy Month 2022 focuses on connecting people with ME/CFS, Long Covid, and other related illnesses—brings together scientists, clinicians, and caregivers to educate Congress and the world. As the prevalence and……

#MEAction Scotland holds its first community call

Last week, #MEAction Scotland volunteers held the first in a series of community calls. The online meetings will take place quarterly and have been set up to connect us with…

MAY 12th: International ME/CFS And FM Awareness Day

May 12th has been designated as International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) since 1992. The CIND … American ME and CFS Society Read More

Fotowedstrijd 12ME

Fotowedstrijd 12ME

Fotowedstrijd 12ME Om de internationale bewustmakingsdag voor ME/CVS in de kijker te zetten, organiseert 12ME een online fotowedstrijd! Maak met je smartphone een prachtige foto van iets dat je raakt,…

World ME Day custom poster maker goes live – what will you create?

World ME Day custom poster maker goes live – what will you create?

The ME community is particularly incredible in one way – it is active and engaged. This has partly from come from necessity – people with ME have had to speak…

CDMRP for ME/CFS: Navigating the Grant Application Process

Solve M.E. hosted special guest, Cecilia Dupecher, PhD Program Manager for PRMRP at the Congressionally Directed Medical Research Programs (CDMRP) for an informational webinar designed to better inform and prepare……

What’s happening around the globe for World ME Day?

What’s happening around the globe for World ME Day?

In the run up to World ME Day on the 12th May we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in New…

New York Times Cites Solve M.E Whitepaper, Quotes VP of Advocacy Emily Taylor

This week, New York Times writer Peter Coy’s piece, “Pushing ‘Long Covid’ Sufferers Too Hard Could Cause Them to Crash,” cited our recently released whitepaper, Long Covid’s impact on adult……

UK Warm Home Discount denied to thousands with disabilities

With energy bills rising 14 times faster than wages, households this winter are predicted to see a fall in real-wage income by nearly £1,000. British Gas further estimates that energy……

Elevating stories of the #MillionsMissing to HHS leadership

Elevating stories of the #MillionsMissing to HHS leadership

#MEAction is advancing ME/CFS advocacy efforts through our ongoing engagement with U.S. federal agencies, including at the Department of Health and Human Services (HHS). We continue to fight for our…

#MEAction Presents: Not Going Quietly Screening & Panel

We have a very exciting opportunity to come together and watch the award-winning documentary Not Going Quietly. We also have an amazing live panel set up to discuss it with…

Blue Sunday 2022 – The Tea Party for M.E.

After an amazing year in 2021, raising over £20,000 for M.E. charities across the world, champion fundraiser Anna Redshaw is inviting you to take part in her Blue Sunday Tea…

Charli Arcouette, notre porte-parole sera panéliste à une conférence des IRCM pour l’encéphalomyélite myalgique

Notre porte-parole, Charli Arcouette, participera à un panel de discussion dans le cadre d’une conférence donnée par les Instituts de recherches cliniques de Montréal (IRCM) sur les maladies mal comprises.…

Ask Congress to TREAT & CARE for Post-Infection Diseases During Advocacy Month

Advocacy Month is an opportunity to share the policy solutions vital to address the growing number of individuals suffering from ME/CFS and Long Covid.  ME/CFS devastated the lives of an……

Do you have severe M.E. or care for someone who does?

Do you have severe M.E. or care for someone who does? The latest edition of Severe ME/CFS: A Guide to Living is now available. Published in 2010, this invaluable book…

WMEA campaign film: Tell us what the world can #LearnFromME?

On May 12th 2022, WAMES is joining with other groups around the world as the World ME Alliance to launch the first World ME Day, and we’re asking “what can…

European ME Coalition joins the World ME Alliance

European ME Coalition joins the World ME Alliance

We are excited to announce that the European ME Coalition (EMEC) is joining our Alliance. This effective organisation has wielded the European Union’s petitions system to build awareness of ME…

What should health professionals #LearnFromME? – WAMES

As part of the World ME Alliance we want to use World ME Day to reach out to health professionals on a personal basis, to help them build an understanding…

Un article dans le Montreal Gazette sur le lien entre l’encéphalomyélite myalgique et la COVID longue

L’AQEM est fière d’avoir collaboré à un article exposant le lien entre l’encéphalomyélite myalgique et la COVID longue durée, paru dans le journal Montreal Gazette le 3 avril 2022… AQEM is…

ME/CFS on TV (Part 3)

ME/CFS ON THE ITALIAN TV SCREEN: A VIRTUOUS MODEL by Giada Da Ros Through sundry television spaces (news, fiction, talk shows), the ME/CFS community challenged existing political, medical, and philosophical…

Solve M.E. co-authors whitepaper “Long Covid Impact on Adult Americans: Early Indicators Estimating Prevalence and Cost”

Solve M.E. co-authors whitepaper “Long Covid Impact on Adult Americans: Early Indicators Estimating Prevalence and Cost”

This week, Solve M.E. invited members of the press to a special event announcing the release of our new whitepaper, Long Covid Impact on Adult Americans: Early Indicators Estimating Prevalence…

Facets of ME: Loneliness

Facets of ME: Loneliness

Welcome to April’s #FacetsOfME where we will focus on loneliness and how this illness affects our need for connection and relationships. Loneliness can be difficult to discuss as contemplating our…

Please Help David Tuller, Our Champion! – AMMES

David Tuller’s spring fundraiser is now live! Tuller has been tireless in his battle against the GET/CBT ideological onslaught! He … News and Research – American ME and CFS Society…

Announcing Long Haul Voices, A Solve M.E. Video Series

Long Haul Voices: Living with Long Covid and ME/CFS Solve M.E. is excited to announce the production of Long Haul Voices, a mini-series created in partnership with Unfixed Media Productions that……

Take part in our campaign film: What can the world #LearnFromME?

Take part in our campaign film: What can the world #LearnFromME?

This May 12th, the World ME Alliance is launching the first World ME Day, and we’re asking “what can the world #LearnFromME?” We know that for far too long stigma…

Action for M.E. – What should the world #LearnFromME?

ME is a global health crisis – up to 30 million people are living with this disease worldwide, and when we take into account the effect on families, carers and…

ME services in Wales can learn from Long COVID Adferiad programme says Health Minister

Welsh Government wants Long COVID community model to also treat and support ME, CFS and MS On 31st March 2022 the Health Minister Eluned Morgan announced further funding for the…

The Virtual Choir is Back — Submissions now Open!

The Virtual Choir is Back — Submissions now Open!

We are excited to announce that submissions are now open to join our next virtual choir! We have so enjoyed sharing your lovely voices with the world, so we had…

What should the world #LearnFromME?

What should the world #LearnFromME?

ME is a global health crisis – up to 30 million people are living with this disease worldwide, and when we take into account the effect on families, carers and…

Lifting of UK Covid restrictions today

April 01, 2022 Responding to the lifting of the Covid restrictions today (1 April), Action for M.E.’s Ruth Richardson, Director of Business Support and Development said:“For many people with M.E.……

Hope 4 ME & Fibro Northern Ireland joins the World ME Alliance

Hope 4 ME & Fibro Northern Ireland joins the World ME Alliance

As we extend our reach across the globe, we are pleased to have one of the foremost ME organisation in Northern Ireland joining us. Hope 4 ME & Fibro Northern…