Take action for World ME Day 2024!
Call on Mexico to become a #GlobalVoiceForME
At the World ME Alliance, we estimate there are over 1,000,000 people with ME in Mexico
We are using people power to reach out to nations all over the world, calling on the people responsible for working with the World Health Organization to become a #GlobalVoiceForME, and we need your help!
Take these simple steps to send an email to your country’s WHO National Counterpart, and remember to copy in the World ME Alliance, so we can follow-up on the connections you help us to make!
- Copy and paste the below template into a new email
- Add your name to the first paragraph, and your contact details at the end
- Edit the template to include a little about yourself, and how ME has impacted your life, as a person with ME or an ally. Remember to be polite.
- Copy and paste the recipients email address into the To: field, and remember to include us at [email protected] as well!
- Press send!
- Share this article with other people in your country to get more people involved!
Copia e incolla il modello di lettera in spagnolo
A: [email protected] , [email protected]
Llamado Urgente a la Acción: Alzar la voz por la Encefalomielitis Miálgica #GlobalVoiceForME
Estimado Dr. José Gerardo Moya Medina,
Mi nombre es [Inserte su nombre] y escribo como ciudadan[o] mexican[o] en representación de más de un millón de personas que viven con Encefalomielitis Miálgica (EM) en México.
Previo a la pandemia de COVID-19 había entre 17 y 30 millones de personas con Encefalomielitis Miálgica en todo el mundo. Al día de hoy, World ME Alliance calcula que existen al menos 55 millones de enfermos a nivel global, pues la investigación muestra que aproximadamente el 50% de quienes sufren de Covid Prolongado (Long Covid) cumplen con los criterios para un diagnóstico de EM.
La Encefalomielitis Miálgica trae consigo enormes efectos económicos: la mayoría de las personas con EM no puede trabajar, el 25% de los enfermos se encuentran confinados en casa o postrados en cama y son altos los costos asociados a los cuidados. A medida que nos acercamos al 12 de mayo, día internacional dedicado a crear conciencia sobre la Encefalomielitis Miálgica y su impacto, le insto a alzar la voz por todas las personas afectadas por esta enfermedad debilitante.
La OMS reconoció a la Encefalomielitis Miálgica como enfermedad neurológica hace 55 años, pero aún enfrentamos desafíos alarmantes. La naturaleza grave e incurable de la EM tiene un impacto dramático sobre la calidad de vida de los pacientes, usualmente obligándolos a abandonar tanto el trabajo como su participación en sociedad. La falta de reconocimiento agrava la lucha de los pacientes. World ME Alliance estima que el número de personas viviendo con EM en México se ha duplicado desde el inicio de la pandemia de COVID-19.
Me comunico para pedir su apoyo en abogar por esta causa en México. Es esencial que tomemos un papel activo en apoyar a quienes viven con esta devastadora enfermedad.
Por favor contacte a la Directora de Comunicación de World ME Alliance a través de [email protected] para coordinar una reunión por Zoom y explorar cómo México puede convertirse en una #GlobalVoiceForME.
Su apoyo es fundamental para mejorar las vidas de las personas afectadas por la Encefalomielitis Miálgica.
Gracias por su tiempo y consideración a este asunto crítico.
Atentamente,
[Nombre Completo]
[Información de Contacto]
Copy and paste your template letter
To: [email protected] , [email protected]
Urgent Call for Action: Become a global voice for ME
Dear Dr. José Gerardo Moya Medina,
I am [Insert Your Name], a citizen and advocate representing the 1,000,000+ people with Myalgic Encephalomyelitis (ME) in Mexico.
Before the COVID-19 pandemic, there were between 17 and 30 million people living with ME worldwide. Now, the World ME Alliance now estimates there are at least 55 million globally, with millions of new cases triggered by COVID-19. Research shows half of those with long COVID meet the criteria for an ME diagnosis.
ME has huge economic implications: most people with ME are unable to work, 25% are housebound or bedbound, and there are substantial costs associated with their care. As we approach World ME Day 2024 on May 12th, dedicated to raising awareness about ME and its impact, I urge you to join me in becoming a voice for those affected by this debilitating condition.
ME was officially recognized as a neurological disease by the WHO 55 years ago, but still faces alarming challenges. Its severe and incurable nature significantly impacts patients’ quality of life, usually forcing them to stop working and taking part in society. Lack of recognition makes their struggles worse. The World ME Alliance estimates that the numbers of people living with ME in Mexico have doubled since the beginning of the COVID-19 pandemic.
I’m reaching out to ask for your help championing the cause of ME in Mexico. It’s crucial we take an active role in supporting those living with this devastating disease.
Please contact the World ME Alliance’s Head of Advocacy and Communications, via [email protected], to arrange a Zoom meeting and explore how Mexico can become a #GlobalVoiceForME.
Your support is pivotal for improving the lives of those affected by ME.
Thank you for your time and consideration on this critical issue.
Yours sincerely,
[Your Full Name] [Your Contact Information]
Thanks for doing your part to build a #GlobalVoiceForME. Next, create your own custom poster to share on #WorldMEDay!
Learn more about what our member organisations in your country are doing for World ME Day 2024. Explore their websites today:
- https://www.facebook.com/sfcem.mexico/
