Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

29 member organisations

in 21 countries

and growing


Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?


Latest News From Our Members

Country-by-Country Highlights for World ME Day 2025

Country-by-Country Highlights for World ME Day 2025

Around the world, individuals, organisations and communities are coming together in to mark World ME Day 2025. Below is a breakdown of national events and campaigns happening by country, highlighting…

Marking World ME Day: A Round-Up of Global Events and Tools

Marking World ME Day: A Round-Up of Global Events and Tools

This World ME Day, on May 12th, communities around the globe are coming together to raise awareness, demand change, and support people living with Myalgic Encephalomyelitis (ME). From international conferences…

World ME Day 2025: Six Myths and Facts Everyone Should Know About Myalgic Encephalomyelitis (ME) 

World ME Day 2025: Six Myths and Facts Everyone Should Know About Myalgic Encephalomyelitis (ME) 

Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is a debilitating illness that affects millions of people worldwide. However, persistent myths and misunderstandings hinder its recognition and treatment.…


Our members

Our member organisations are fighting for people with ME across the globe. Here’s a few of the organisations collaborating with us, but you can view all of them here.

Aliança Millions Missing

Aliança Millions Missing

AMMES – The American ME and CFS Society

AMMES – The American ME and CFS Society

Action for M.E.

Action for M.E.

MYOS

MYOS

WAMES – Welsh Association of ME & CFS Support

WAMES – Welsh Association of ME & CFS Support

Solve M.E.

Solve M.E.

#MEAction

#MEAction

ME CVS Nederland

ME CVS Nederland