Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

29 member organisations

in 21 countries

and growing


Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?


Latest News From Our Members

World ME Day 2025: Six Myths and Facts Everyone Should Know About Myalgic Encephalomyelitis (ME) 

World ME Day 2025: Six Myths and Facts Everyone Should Know About Myalgic Encephalomyelitis (ME) 

Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is a debilitating illness that affects millions of people worldwide. However, persistent myths and misunderstandings hinder its recognition and treatment.…

Hospital Mistreatment of Severe ME Patients Globally – #SevereMEDay 2024

Hospital Mistreatment of Severe ME Patients Globally – #SevereMEDay 2024

This Severe ME Day, 8th August, the World ME Alliance is highlighting the experiences of people with Severe ME in hospitals across the globe. People with ME everywhere experience stigma,…

Safer Hospital Care for Severe ME – #SevereMEDay 2024

Safer Hospital Care for Severe ME – #SevereMEDay 2024

Severe ME Day, held on the 8th of August each year, is a significant occasion for the World ME Alliance and the global community affected by Myalgic Encephalomyelitis (ME). This…


Our members

Our member organisations are fighting for people with ME across the globe. Here’s a few of the organisations collaborating with us, but you can view all of them here.

Millions Missing France

Millions Missing France

Emerge Australia

Emerge Australia

AQEM – Association québécoise de l’encéphalomyélite myalgique

AQEM – Association québécoise de l’encéphalomyélite myalgique

Millions Missing Belgique

Millions Missing Belgique

Solve M.E.

Solve M.E.

Neúnavní

Neúnavní

ME Support (IOM)

ME Support (IOM)

ME CVS Nederland

ME CVS Nederland