Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

29 member organisations

in 21 countries

and growing


Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?


Latest News From Our Members

Hospital Mistreatment of Severe ME Patients Globally – #SevereMEDay 2024

Hospital Mistreatment of Severe ME Patients Globally – #SevereMEDay 2024

This Severe ME Day, 8th August, the World ME Alliance is highlighting the experiences of people with Severe ME in hospitals across the globe. People with ME everywhere experience stigma,…

Safer Hospital Care for Severe ME – #SevereMEDay 2024

Safer Hospital Care for Severe ME – #SevereMEDay 2024

Severe ME Day, held on the 8th of August each year, is a significant occasion for the World ME Alliance and the global community affected by Myalgic Encephalomyelitis (ME). This…

Announcing our Strategic Leadership Board

Announcing our Strategic Leadership Board

We are delighted to announce the establishment of the Strategic Leadership Board for the World ME Alliance. This initiative marks a significant step forward in our mission to combat myalgic…


Our members

Our member organisations are fighting for people with ME across the globe. Here’s a few of the organisations collaborating with us, but you can view all of them here.

Millions Missing Belgique

Millions Missing Belgique

ACAF

ACAF

Aliança Millions Missing

Aliança Millions Missing

Neúnavní

Neúnavní

Action for M.E.

Action for M.E.

MYOS

MYOS

Mirame Arts

Mirame Arts

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society

ANZMES – The Associated New Zealand Myalgic Encephalomyelitis Society