Bringing myalgic encephalomyelitis out of the shadows

We bring together ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) organisations across the globe. Could your national organisation benefit from international support?

27 member organisations

in 20 countries

and growing


Our Purpose

A world without ME/CFS

Coordination

A coordinated, simultaneous dialogue with policymakers at national and international levels, increasing its potential impact.

Collaboration

The pooling, sharing, and dissemination of advocacy and communication of resources.

Engagement

The expansion of engagement with relevant stakeholders – worldwide organisations sharing the same message is much more powerful than an isolated voice.

Covid-19 is leading to a rise in post-infectious disease.

The World Health Organisation labels these as “non-communicable diseases”, despite being triggered by infection. We need them to recognise and address this crisis. Could your organisation be part of lobbying for this?


Latest News From Our Members

“Everyday I am walking the tiniest tightrope of forward progress” – Cynthia, USA

“Everyday I am walking the tiniest tightrope of forward progress” – Cynthia, USA

Name: Cynthia AdinigPronouns: she/herAge: 38Home: Alexandria, VA, USASick for: 4 years In March 2020 my family and I got a Covid infection so mild we were denied access to a…

Speaker Announcements for Bridging Borders livestream

Speaker Announcements for Bridging Borders livestream

On May 10th we’ll joining with advocates across the world to showcase the committed  work of non-profit organisations, all building a #GlobalVoiceForME. Find out who is speaking and the range…

“I miss the real Priscilla, who loves to dance” – Priscilla, Brazil

“I miss the real Priscilla, who loves to dance” – Priscilla, Brazil

Name: Priscilla FalcãoPronouns: she/herAge: 46Home: Salvador, BrazilSick for: 7 years I’ve always had a very fragile immune system, so my illness is probably post-viral. I feel like I only have…


Our members

Our member organisations are fighting for people with ME across the globe. Here’s a few of the organisations collaborating with us, but you can view all of them here.

Solve M.E.

Solve M.E.

CFS/ME Associazione Italiana

CFS/ME Associazione Italiana

Millions Missing Mexico

Millions Missing Mexico

Plataforma Familiars FM-SFC-SQM Síndromes de Sensibilització Central

Plataforma Familiars FM-SFC-SQM Síndromes de Sensibilització Central

#MEAction

#MEAction

Emerge Australia

Emerge Australia

12ME

12ME

ME/CFS Israel

ME/CFS Israel