Millions Missing Canada is a Canadian advocacy organisation focused on research and treatment. Over the past few years, they have led multiple participatory campaigns to reach government and health care officials, raising awareness of the lives of people with ME in Canada and the urgent need for increased research funding and understanding of this disease.
They also work to inform, educate and act as a resource for the Canadian ME community who often reach out for help and support.
As a member of the ICanCME Research Network, they work with researchers, clinicians, and patient partners to advance the understanding of ME and its biomedical research.
The organisation is led by four core members: three who have ME and one who cared for her severely ill daughter.