Our members

Founding Member #MEAction is an international network of patients fighting for health equality for ME by building community and mobilizing patients, families, and allies. We were founded with the belief…

Member 12ME is a Belgian non-profit association that wants to draw attention to the seriousness of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) with a positive story. In doing so,…

Founding Member ACAF (Associació Catalana d’Afectades i Afectats de Fibromiàlgia i d’altres Síndromes de Sensibilització Central) is a mutual help association formed by people affected by Central Sensitization Syndromes (CFS/ME…

Founding Member Our mission is empowering people with M.E. to fulfil their potential and secure the care and support they need, while working towards a greater understanding of the illness…

Aliança Millions Missing brings together ME/CFS groups and individuals from Portugal & Brazil and other Portuguese-speaking communities. They are a dedicated collective, committed to raising awareness about Myalgic Encephalomyelitis (ME)…

Founding Member The American ME and CFS Society is dedicated to serving the needs of patients and caregivers through support, advocacy, and education. We seek to channel patient perspectives to…

Founding Member The Associated New Zealand Myalgic Encephalomyelitis Society (ANZMES) has been serving New Zealanders with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome since 1980. They provide information, support and practical…

Founding Member Our mission is to promote awareness and recognition of myalgic encephalomyelitis (a disease also known as chronic fatigue syndrome), to help those affected and to help promote research.…

Member The CFS/ME Associazione Italiana is a small organisation working to ensure people with ME in Italy have access to information about their disease from across the world.  The organisation…

Member Emerge Australia’s impressive work has earned them recognition and trust as the leading national patient organisation for ME/CFS in Australia. With a dedicated focus on improving the lives of…

Member The European ME Coalition (EMEC) is was founded in 2018 by a group of patients with a strong desire to improve the lives of people with ME in Europe…

Founding Member The ME community in the UK is served by a considerable range of charities, with even the largest being relatively small. Recognising the benefit of being able to…

Member Hope 4 ME & Fibromyalgia Northern Ireland is a registered charity run by patients and volunteers. Founded in 2011, they have grown from strength to strength, achieving charitable status…

Member Japan ME Association (JMEA) is a non-profit organisation based in Tokyo, Japan. Their mission is to help create a society where persons with ME are able to receive effective…

Member ME/CVS Nederland is a Dutch charity working to empower and improve the position of people with ME in the Netherlands. They work to provide information, enable peer education, advocate…

Member ME Support (IOM) was originally established as a self-help group in 1988. It is now a fully-fledged charity providing peer support and information to people with ME across the…

Member ME/CFS Israel is a pioneering organisation dedicated to raising awareness and providing accurate information on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in Israel. They grew organically through social media, building…

Member Millions Missing Belgique is a voluntary organisation that advocates primarily in the French-speaking Wallonie region of Belgium, but works closely with colleagues across the country to ensure their advocacy…

Member Millions Missing Canada is a Canadian advocacy organisation focused on research and treatment. Over the past few years, they have led multiple participatory campaigns to reach government and health…

Member Millions Missing France is a voluntary, non-hierarchical organisation based in Auvergne. The team behind this organisation advocate for people with ME across France. Founded in 2018 they are led…

Member Millions Missing Mexico is a voluntary organisation dedicated to raising awareness about Myalgic Encephalomyelitis (ME) and supporting people with the disease in Mexico. The organisation was founded in 2018…

Mirame Arts is dedicated to improving the lives of ME patients through creative and innovative solutions. They recognize the interconnectedness of educational opportunities, workforce participation, and social policy with ME,…

Member MYOS (Associação Nacional Contra a Fibromialgia e Síndrome de Fadiga Crónica) is a trailblazing organisation in Portugal that has been championing the cause of Myalgic Encephalomyelitis (ME) and Fibromyalgia…

Member Neúnavní is a charity supporting individuals with Myalgic Encephalomyelitis (ME) in the Czech Republic. Neúnavní provides crucial support services, through free therapy to support individuals learning to live with…

Founding Member We want to help society visualize, understand and comprehend the real situation of affected patients. However, relatives also suffer. They often find themselves alone in the face of…

Founding Member The Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome…

Founding Member The ME CFS Foundation South Africa is the first entity of its kind in South Africa (and Africa) founded in response to ME/CFS. We provide healthcare and counselling…

Founding Member Working for ME in Wales Our vision is for a Wales where adults and children with ME, CFS and PVFS and their carers are taken seriously and treated…