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Millions Missing France joins the World ME Alliance

With great excitement, we announce our 20th member, and yet another country joining our ranks! Today Millions Missing France officially joins our Alliance, providing yet more global reach and we build a stronger ME community together.

Millions Missing France was founded in 2018, and has since grown to become a membership organisation since October 2019. It is based in Auvergne in central France, but works across the entire nation.

They have decided to take a non-hierarchical approach to managing their voluntary organisation, with a college of six members making decisions by consensus, all of whom have personal experience of ME.

This personal experience, including experience of severe ME, is part of what makes Millions Missing France so attuned to the needs and realities of people living with ME in France.

Their recent work has involved:

  • participating in the work of the High Authority of Health for the management of Long Covid
  • developing a pacing programme with training for carers and documents for patients
  • developing medical education material to raise awareness among doctors
  • submitting a request for an alert to be made about child protection procedures being wrongfully implemented for children with ME.

They aim to build to a larger mobilisation for World ME Day on 12th May 2023, with a particular focus on medical education.

We are pleased to have them working with us, sharing their expertise and participating in global action to improve the lives of people with ME everywhere.

You can check out their website here, or find them on Facebook, Twitter and Instagram.

To celebrate our 20th member we are also launching our new LinkedIn page!

You can now find us at

Come follow our new page and help us to build even more connections!

We continue to look for more national ME organisations to join the World ME Alliance – if you are interested in finding out more look here.