World ME Day 2022 roundup

After an incredible World ME Day we wanted to share some of the amazing progress made across the globe. As individuals and organisations, our community stepped forward to fight for people with ME everywhere. We're going to do this by country, because there is just so much to cover! This…

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World ME Day posters show what we can #LearnFromME

This World ME Day we asked our community to customise poster to demonstrate what we should all #LearnFromME. The profound loss endured by people with ME comes through, alongside the joy so many in our community still find, facts and figures about ME, and nuggets of wisdom or knowledge that…

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Research alerts this World ME Day

We know there isn't enough research into ME happening around the world, but there is some and we're highlighting a few projects you might be able participate in. All of our member organisations are working to increase the amount of research happening into ME, and this will continue to be…

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What’s happening around the globe for World ME Day? Part 2

It's almost World ME Day (12th May) and we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in Spain, Belgium, the USA, the UK and more. Keep on reading to see how the power of collaboration is spreading World ME Day across continents.…

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#MEAction Meets with the Department of Labor

#MEAction continues our advocacy for the #MillionsMissing in a recent meeting with the Office of Disability Employment Policy (ODEP) at the U.S. Department of Labor (DOL) where we presented on community issues affecting people with ME and Long COVID and offered policy recommendations that DOL can take to address them.…

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Call-to-action for California: Centers of Excellence

We have a golden opportunity to secure substantial funds to address the clinical care crisis in ME/CFS and Long COVID, but your help is needed NOW. #MEAction and the Patient-Led Research Collaborative have put together a proposal that calls for the State of California to appropriate $120 million for Centers of…

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Solve M.E Kicks Off Advocacy Month Highlighting Long Covid’s Widespread Impact, Spotlight on ME/CFS

Advocacy Month 2022 focuses on connecting people with ME/CFS, Long Covid, and other related illnesses—brings together scientists, clinicians, and caregivers to educate Congress and the world. As the prevalence and... This post appeared first on Solve ME/CFS Initiative. Read More

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#MEAction Scotland holds its first community call

Last week, #MEAction Scotland volunteers held the first in a series of community calls. The online meetings will take place quarterly and have been set up to connect us with more people with ME and allies across Scotland. Our first call was a success! We were delighted to be joined…

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