Tell HHS about your experience of healthcare discrimination

People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge our government to move forward with improved protections to secure access to healthcare that is free from discrimination or prejudice.…

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Charter for unpaid carers (Wales)

Welsh Government Charter for unpaid Carers This Charter for Unpaid Carers sets out the legal rights of unpaid carers in Wales under the Social Services and Well-being (Wales) Act 2014. These rights are the same for all unpaid carers, whether they are an adult, a young person or a child.…

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ME Support (IOM) joins the World ME Alliance

Sometimes being in a small place can enable a level of advocacy and engagement in political landscapes that is harder in large countries. This is absolutely the case for the Isle of Man, where the charity ME Support (IOM) has made major strides in improving the support available for people…

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ME Support (IOM)

Member ME Support (IOM) was originally established as a self-help group in 1988. It is now a fully-fledged charity providing peer support and information to people with ME across the Isle of Man. Through in-person and online meetings they reduce the isolation many people with ME experience, and build a…

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How Dept. of Labor can better track disability from chronic illness

Earlier this month #MEAction collaborated with Patient-Led Research Collaborative (PLRC) to suggest changes that the U.S. Department of Labor (DOL) should make in order to better track disability due to chronic illnesses such as ME/CFS and Long COVID in its regular surveys of disability employment issues.  We provided feedback on…

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Social Prescribing – Welsh Government consultation

What is a suitable model for social prescribing in Wales?   The Welsh Government want to develop a national framework for social prescribing and is asking Welsh residents to comment.   What is social prescribing?  Connecting people to community based support The Welsh Government wants to make sure you get…

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IACFSME conference videos & reports 2022

IACFS/ME’s 15th Medical/ Scientific Conference 27-30 July 2022   If you missed out on this large conference organised by the The International Association for CFS/ME (IACFS/ME) you can now watch the video recordings of the lectures or read some of the many written reports... News | WAMES (Working for ME…

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ME/CVS Stichting Nederland joins the World ME Alliance

This month, ME/CVS Stichting Nederland joined the World ME Alliance as a member. This Dutch organisation has been advocating for people with ME since 1987, and has a variety of focuses as they work to empower and improve the position of people with ME in the Netherlands. Their core focuses…

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