Severe ME Day – August 8th 2022

Severe ME Day takes place every year on August 8th. It is considered a day for remembrance of those who suffer from and have died from severe myalgic encephalomyelitis (ME), as well as a chance to educate the public about severe ME and advocate for better treatment and research. About…

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We “do not endorse the Lightning Process” say World ME Alliance members

The World ME Alliance and its members have worked closely over the past few months to reach a collective position on the Lightning Process.  The Lightning Process is a commercial training programme that is promoted by practitioners as a cure or treatment for ME without due evidence. Additionally, there are…

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World ME Day 2022 roundup

After an incredible World ME Day we wanted to share some of the amazing progress made across the globe. As individuals and organisations, our community stepped forward to fight for people with ME everywhere. We're going to do this by country, because there is just so much to cover! This…

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World ME Day posters show what we can #LearnFromME

This World ME Day we asked our community to customise poster to demonstrate what we should all #LearnFromME. The profound loss endured by people with ME comes through, alongside the joy so many in our community still find, facts and figures about ME, and nuggets of wisdom or knowledge that…

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What’s happening around the globe for World ME Day? Part 2

It's almost World ME Day (12th May) and we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in Spain, Belgium, the USA, the UK and more. Keep on reading to see how the power of collaboration is spreading World ME Day across continents.…

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World ME Day custom poster maker goes live – what will you create?

The ME community is particularly incredible in one way – it is active and engaged. This has partly from come from necessity – people with ME have had to speak out for themselves as other parts of society have not. But it is also one of our greatest strengths. Showing…

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European ME Coalition joins the World ME Alliance

We are excited to announce that the European ME Coalition (EMEC) is joining our Alliance. This effective organisation has wielded the European Union’s petitions system to build awareness of ME in this important international setting. Founded in 2018 by a group of patients and carers, they have engaged thousands as…

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Take part in our campaign film: What can the world #LearnFromME?

This May 12th, the World ME Alliance is launching the first World ME Day, and we’re asking “what can the world #LearnFromME?” We know that for far too long stigma has impacted the care people with ME receive, and has led to a global lack of funding for research into…

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