“Everyday I am walking the tiniest tightrope of forward progress” – Cynthia, USA

Name: Cynthia AdinigPronouns: she/herAge: 38Home: Alexandria, VA, USASick for: 4 years In March 2020 my family and I got a Covid infection so mild we were denied access to a Covid test. But on Mothers Day, May 10th 2020, my life changed forever when I had the first incident that…

Continue Reading“Everyday I am walking the tiniest tightrope of forward progress” – Cynthia, USA

Speaker Announcements for Bridging Borders livestream

On May 10th we'll joining with advocates across the world to showcase the committed  work of non-profit organisations, all building a #GlobalVoiceForME. Find out who is speaking and the range of topics they are covering! Register to watch on Zoom RSVP to watch on Facebook Speakers Mlindeni Gabela and Sam…

Continue ReadingSpeaker Announcements for Bridging Borders livestream

“I miss the real Priscilla, who loves to dance” – Priscilla, Brazil

Name: Priscilla FalcãoPronouns: she/herAge: 46Home: Salvador, BrazilSick for: 7 years I’ve always had a very fragile immune system, so my illness is probably post-viral. I feel like I only have 10-20% of the energy capacity I had before I got sick. If doctors were trained to deal with ME/CFS, I…

Continue Reading“I miss the real Priscilla, who loves to dance” – Priscilla, Brazil

“I fear being conscripted” – Max, Ukraine

Name: MaxPronouns: he/himAge: 36Home: Lviv, UkraineSick for: 18 years Back in 2006 I was a perfectly healthy, vibrant 2nd year University student studying molecular physics in Kyiv, Ukraine. I caught pneumonia and first thought nothing of it, but later had to spend 2 weeks in hospital to recover. I was…

Continue Reading“I fear being conscripted” – Max, Ukraine

“We shouldn’t be out of sight, out of mind” – Una, South Africa

Name: Una Alexia KarlsenPronouns: she/herAge: 42Home: Cape Town, South AfricaSick for: 20 years (Content warning: medically assisted dying) In 2020, during the Cape Town Pride parade, I collapsed, just half a block from the start. If I tried to stand up I would become dizzy, my heart rate would shoot…

Continue Reading“We shouldn’t be out of sight, out of mind” – Una, South Africa

“I’m on a lonely island, surrounded by a turbulent sea” – Marya, Brazil

Name: Marya FerreiraAge: 52Pronouns: she/herHome: Cabo de Santo Agostinho, Pernambuco, BrasilSick for: 22 years I went to bed feeling fine and woke up with the flu - high fever, runny nose, nasal congestion, body aches, sneezing, inflamed throat.... Two months later, I woke up as if the flu had never…

Continue Reading“I’m on a lonely island, surrounded by a turbulent sea” – Marya, Brazil

Register for our live event: Bridging Borders – Global Voices from the World ME Alliance

Welcome to the World ME Alliance's first event to share experience and learning in our work on Myalgic Encephalomyelitis (ME) worldwide. Join us on May 10th at 5pm BST (see below for local times) as we showcase the committed  work of non-profit organisations from around the globe, all building a…

Continue ReadingRegister for our live event: Bridging Borders – Global Voices from the World ME Alliance

The Inextricable Link Between ME and Long Covid: Solidarity with International Long Covid Awareness Day

As we observe International Long COVID Awareness Day on March 15th, the World ME Alliance stands in solidarity with the millions worldwide living with Long COVID, many of whom are now being diagnosed with Myalgic Encephalomyelitis (ME). This day serves as a poignant reminder of and call-to-action for the millions…

Continue ReadingThe Inextricable Link Between ME and Long Covid: Solidarity with International Long Covid Awareness Day

Be part of the World ME Day 2024 campaign film

As we approach World ME Day 2024, we invite you to be a part of a new short film that aims to shed light on the reality of Myalgic Encephalomyelitis (ME). The World Health Organization recognized ME 55 years ago, yet any treatment remains elusive, and millions more are now…

Continue ReadingBe part of the World ME Day 2024 campaign film

Mirame Arts joins the World ME Alliance as our first member in Germany

The World ME Alliance is thrilled to announce that Mirame Arts e.V., a dedicated non-profit organisation from Germany, has joined our ranks as a member. Mirame Arts have been working with us for a while as a project partner supporting the development of plans for World ME Day 2024, and…

Continue ReadingMirame Arts joins the World ME Alliance as our first member in Germany