We are excited to welcome MYOS (Associação Nacional Contra a Fibromialgia e Síndrome de Fadiga Crónica) as the newest member of the World ME Alliance and the first organisation from Portugal to join our global effort. Established in 2003, MYOS has been a driving force in supporting individuals with Myalgic Encephalomyelitis (ME) and Fibromyalgia in Portugal.
Founders of MYOS recognised the common struggles and overlaps between ME and fibromyalgia. While fibromyalgia has gained better recognition in Portugal, people with ME continue to face a high level of stigma in the Portuguese community. MYOS has successfully campaigned for the development of national fibromyalgia guidelines in Portugal. Now, they aim to achieve the same for ME.
Operating across Portugal’s regions and islands, MYOS ensures its initiatives are accessible to all. The organisation follows an elected board system, with patients and carers leading decision-making processes.
Inclusivity is a core value of MYOS, and a new working group of patients and members with ME holds delegated power to drive campaigns.
Collaboration has been crucial to MYOS’s advancements. They have partnered with expert entities, including Lisbon’s medical school, where they connect medical students with patients to enhance understanding and empathy.
Currently, MYOS is currently organising a conference on ME that will be held in Lisbon in 2024 around the theme “Paving the Way for Improved Diagnosis and Treatment of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome and Post-Covid Syndrome”. The World ME Alliance is proud to be a named sponsor of this important event.
You can donate today to help make this conference a reality.
Join us in welcoming MYOS to the World ME Alliance. Together, we strive to improve the lives of those affected by ME and fibromyalgia, both in Portugal and around the world.
We continue to look for more national ME organisations to join the World ME Alliance – if you are interested in finding out more look here.