In a move that underscores their commitment to championing the cause of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID on an international scale, Emerge Australia has joined the World ME Alliance. Emerge Australia’s impressive work has earned them recognition and trust as the leading national patient organisation for ME/CFS in Australia.
Emerge Australia is the 26th organisation to join the World ME Alliance, expanding the global network of ME organisations to 19 countries. This collaboration not only strengthens the collective voice of the ME community but also offers invaluable expertise.
At the heart of Emerge Australia’s mission is their innovative national telehealth support service. This program empowers individuals and their carers living with ME/CFS and Long COVID by supporting them to manage their symptoms and access crucial services. The organisation’s commitment goes beyond telehealth, as they provide up-to-date, evidence-based information for patients and caregivers, ensuring that Australians affected by ME/CFS and Long COVID have access to essential information.
Emerge Australia understands that connecting with others who share similar experiences is vital. They foster a community where people can find connection and understanding through webinars, online forums, face-to-face community groups, and now, their “Imagine Podcast.” This podcast delves deep into various aspects of ME through heart-wrenching and gritty conversations, shedding light on the often invisible struggles of those affected.
A trusted entity
As a trusted entity in Australia, Emerge Australia provides evidence-based advice to government agencies and is a sought-after resource for media and health professionals working with ME and Long COVID. Their continuing efforts to drive policy change aim to improve the lives of Australians living with these conditions, ensuring that their needs and concerns are heard and addressed.
One standout aspect of their work is the education of healthcare professionals. Emerge Australia provides accurate and balanced information and resources for medical practitioners, ensuring timely diagnosis and safe medical care through both online and in-person training initiatives.
AusME – The Australian ME/CFS and long COVID Registry and Biobank
As part of their ongoing commitment to supporting and facilitating ME and Long COVID research, Emerge Australia recently launched AusME, the Australian ME/CFS and long COVID Registry and Biobank. This project is a collaboration with several Australian universities and builds on Emerge Australia’s experience managing the You+ME Australia registry. Through AusME, Emerge Australia continues to foster collaborative relationships with researchers across Australia and encourage high quality ME and Long COVID research.
Anne Wilson, Emerge Australia’s CEO, emphasises the organisation’s commitment to reaching out on a global scale. Their decision to join the World ME Alliance is a testament to their desire to engage with other ME advocates worldwide and collaborate on the pressing issues faced by those affected by these conditions.
With Emerge Australia’s innovative approach to patient support, healthcare education, and their captivating “Imagine Podcast,” the World ME Alliance gains a valuable partner in their global mission to advocate for those living with ME.
We continue to look for more national ME organisations to join the World ME Alliance – if you are interested in finding out more look here.