You are currently viewing The Inextricable Link Between ME and Long Covid: Solidarity with International Long Covid Awareness Day

The Inextricable Link Between ME and Long Covid: Solidarity with International Long Covid Awareness Day

As we observe International Long COVID Awareness Day on March 15th, the World ME Alliance stands in solidarity with the millions worldwide living with Long COVID, many of whom are now being diagnosed with Myalgic Encephalomyelitis (ME). This day serves as a poignant reminder of and call-to-action for the millions around the globe grappling with the debilitating long-term consequences of the COVID-19 pandemic, that are far from over.

Long COVID describes a collection of lingering symptoms devastating the lives of millions of COVID-19 survivors. These symptoms persist in an estimated 10–20% of COVID-19 patients, regardless of infection severity, even after the patient no longer tests positive for the virus or antibodies. While recovery times for COVID-19 vary from person to person, Long COVID generally refers to cases where symptoms continue to persist for 90 days or more.

Increasing research into Long COVID demonstrates many similarities to other chronic illnesses known to be associated with viral triggers, such as Myalgic Encephalomyelitis (ME), postural orthostatic tachycardia syndrome (POTS), dysautonomia, mast cell activation syndrome (MCAS), and more.

Research now suggests that 50% of people with Long COVID meet the criteria for an ME diagnosis. The World ME Alliance estimates that the number of people living with ME worldwide has likely doubled since the beginning of the COVID-19 pandemic.

As this phenomenon continues to garner increased attention from the medical community and society at large, it is crucial to acknowledge the intersection of Long COVID and ME.

On International Long COVID Awareness Day, we urge individuals, healthcare providers, and policymakers to recognise the profound impact of Long COVID, ME, dysautonomia and other infection associated chronic conditions.

Take Action with a Long COVID organisation today:

  1. Long Covid Alliance: Join forces with the Long Covid Alliance to access resources, support networks, and advocacy opportunities dedicated to addressing the challenges of Long Covid. Visit for more information.
  2. COVID19 Longhauler Advocacy Project: Engage with the COVID19 Longhauler Advocacy Project for advocacy initiatives in the United States, community engagement, and updates on Long Covid research and support efforts. Visit to learn more.
  3. LongCovidAwareness.Life: Explore LongCovidAwareness.Life for comprehensive information, personal stories, global calls-to-action, and resources related to Long Covid. Visit LongCovidAwareness.Life to get involved.

At the World ME Alliance, we stand united with individuals affected by Long COVID on International Long COVID Awareness Day. By fostering understanding, advocating for support, and joining forces with organisations dedicated to these overlapping conditions, we can create a more compassionate and informed society. Together, we strive for a future where everyone receives the care, support, and dignity they deserve.