Welcome to the World ME Alliance’s first event to share experience and learning in our work on Myalgic Encephalomyelitis (ME) worldwide. Join us on May 10th at 5pm BST (see below for local times) as we showcase the committed work of non-profit organisations from around the globe, all building a #GlobalVoiceForME.
At this event, hosted by the World ME Alliance, we’ll take you on a journey across the globe, highlighting the efforts of non-profit organisations dedicated to raising awareness, providing support, and advocating for change within the ME community.
Through a series of presentations and discussions, you’ll hear firsthand accounts of grassroots initiatives, and innovative advocacy campaigns aimed at breaking down barriers and amplifying the voices of those affected by ME.
Together, we’ll bridge borders, forge connections, and pave the way for a brighter future for people with ME.
Livestream Information: Register below to join us on Zoom. This event will also be livestreamed on our Facebook page, allowing individuals from around the world to tune in and join the conversation in real-time. If you can’t make it for the live broadcast, don’t worry! The event will be available to watch afterwards on Facebook and YouTube, ensuring that everyone has the opportunity to learn from this valuable exchange of ideas.
Speakers
Mlindeni Gabela and Sam Pearce
MELCuSA
South Africa
Reporting on the world’s first SICK Pride event
Giada Da Ros
CFS/ME Associazione Italiana
Writing the book “NONSOLOFATICA” (NOT JUST FATIGUE), and exploring ME and Long COVID in more depth through a podcast
Sonya Chowdhury
Action for M.E.
United Kingdom
Developing parliamentary champions and collaborating on the UK government’s delivery plan for ME
Hélène Bennès
Millions Missing France
Legal and moral support for families of children with ME who have been subjected to damaging procedures
Emily Taylor
Solve M.E.
United States
Coordinating the Long COVID Alliance, Ramsay Awards and Advocacy Week!
Linda Campbell
Hope 4 ME & Fibromyalgia
Northern Ireland
Developing the “Discover ME” film and virtual reality experience and medical education materials for universities
Martin Hippe
Mirame Arts
Germany
How high-impact, short films can assist with communications and advocacy. The power of emotional marketing.
Joan Serra Hoffman
Millions Missing Aliança and MYOS Portugal
Learnings from the 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID
Event Times in Various Time Zones:
- UK: 10th May, 5pm BST
- Portugal: 10th May, 5pm WEST
- Netherlands: 10th May, 6pm CEST
- Germany: 10th May, 6pm CEST
- France: 10th May, 6pm CEST
- Spain: 10th May, 6pm CEST
- Italy: 10th May, 6pm CEST
- South Africa: 10th May, 6pm SAST
- USA: 10th May, 12pm EDT / 9am PDT
- Canada: 10th May, 12pm EDT / 9am PDT
- Mexico: 10th May, 11am CDT
- Brazil: 10th May, 1pm BRT
- Australia: 11th May, 2am AEST
- New Zealand: 11th May, 4am NZST
- Japan: 11th May, 1am JST
