NPR featured #MEAction in an article about long COVID called, “For patients with long COVID, chronic fatigue syndrome may offer a guiding star.” MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, speaks about how long COVID researchers and doctors must learn from the ME/CFS community. “People with chronic complex…
Welcome to the jungle, the press jungle! It’s hot and noisy here, with news fresh off the press. Trying to get the attention of the media is not as impossible as legend had it! This is Adriane, and as your Press Scribe, I’m here to write our way through this…
Nominate Action for M.E. in the My Favourite Voucher Codes Charity Poll this December and help us win 20% of the company’s profits! We are excited to announce that we are taking part… This post first appeared on Action for M.E. Read more >>
November 23, 2021 Over 1,000 people have now voted for their M.E./CFS research priorities. People with M.E./CFS, carers and clinicians are all asked to take part. The M.E./CFS Priority Setting Partnership… This post first appeared on Action for M.E. Read more >>
Hi, everyone! It’s Jaime, the Director of Scientific & Medical Outreach at #MEAction. During this week’s #MEAction Giving Adventure we swam through the Research Lagoon as we surpassed our second fundraising level of US $20,000/UK￡14,820. While our fundraising format this year is fun and lighthearted, the work #MEAction is doing…
Over 1,000 people have now voted for their ME/CFS research priorities. People with ME/CFS, carers and clinicians in the UK are all asked to take part. The ME/CFS Priority Setting Partnership is particularly looking for more people from ethnic minorities, carers and health care professionals to take part. So far:…
On Tuesday 30th November at 5pm, #MEAction UK are holding a community Q&A, and will be joined by two of the NICE committee members who have spent almost 3 years working on the new ME/CFS guideline. The post Chat to NICE ME/CFS guideline committee members appeared first on #MEAction Network.…
November 15, 2021 The next All-Party Parliamentary Group (APPG) meeting for M.E. will take place Wednesday 24th November between 2pm-3pm. The meeting will focus on the new National Institute for Health… This post first appeared on Action for M.E. Read more >>
Hey folks, it’s me Ben. During this week’s #MEAction Giving Adventure we moved through the Forest of Federal Agencies as we surpassed our first fundraising level of US$15,000/UK￡11,178. While this fundraising adventure is all about putting the FUN in Fundraising, the work #MEAction has done within US Federal Agencies has…
The next meeting of the All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG on ME) will take place from 2 – 3 pm on 24 November 2021. Email your MP asking them to attend, and help to ensure the new ME/CFS guideline is implemented. Find their contact details at: https://members.parliament.uk/FindYourMP This…