On World AIDS Day, We’re Taking Action at the White House

MEAction is headed back to the White House for another BOLD ACTION on December 1st at 12pm ET for World AIDS Day. Join us virtually—or on-site if you’re able—for an important day of action. We’ve teamed up with the amazing and dedicated activists at Health GAP, ACT UP, Treatment Action…

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Infection-associated chronic disease experts needed at ARPA-H

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy…

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BOLD ACTION is a Commitment to Healthcare Justice for People with ME

BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and passive—commitment to seeing healthcare justice for people with ME. It is about bringing our issues to the forefront of public consciousness and putting strong pressure on our leaders to act. Taking…

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What Primary Care practitioners need to know about the new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome in adults

Caroline Kingdon’s new paper on the NICE guideline for ME was co-written with #MEAction UK volunteer Adam Lowe, as well as Charles Shepherd of the ME Association and Luis Nacul of the London School of Tropical Medicine.  As members of the NICE guideline development committee, the authors wrote this paper…

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#MEAction Response to NY Magazine’s Egregious Article on ME and Long COVID

New York Magazine’s Intelligencer published an fallacious article last week about Long COVID and ME/CFS in which the author, Jeff Wise, paternalistically argues that graded exercise therapy (GET) and cognitive behavioral therapy (CBT) can successfully treat patients if only the ME and Long COVID communities were open to this possibility.…

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#MEAction’s BOLD Press Strategy Leads to BIG Press Payoff!

Taking BOLD ACTION with our press outreach has led to national media writing about ME. Nothing says BOLD ACTION like our press work. We are working daily to cultivate relationships with journalists and educate the press about ME, and we are seeing immense results.  In the past few weeks alone,…

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Action for M.E.’S Christmas e-Card Design Competition is back!

Get Christmassy and creative however you like, whether it’s a drawing, painting, collage, photograph or even a cross-stitch. Your design can be of anything, as long as it fits within a Christmas theme. Check out last year’s winners for some inspiration! The winning designs will be turned into... This post…

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#MillionsMissing France: Rally in Bourges, Interview with Ms. Chantal Somm

#MillionsMissing France has been busy. This month, in tandem with Adapted Physical Activity Expert Gilles Thöni, the association addressed the French National Authority for Health (HAS) requesting, as they have since 2020, that the HAS focus of aspects of their diagnostics policy on Post-Exertional Malaise (PEM), a hallmark symptom for…

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