Myalgic Encephalomyelitis (ME) is a debilitating and complex condition that affects millions of people across the globe. On May 12th, World ME Day is observed to raise awareness of this chronic illness, and to advocate for the millions of people who live with it. The disease where pushing harder can…
It’s hard to believe that we’re well into the third year of the COVID-19 pandemic, which coincidentally overlaps with my time as Solve M.E.’s President and CEO. In this time... The post An Evolving Landscape: Long Covid’s Impact on ME/CFS appeared first on Solve ME/CFS Initiative.... Read More >>
Building on our commitment to centering the crucial voices from our community in the leadership and decision-making at Solve M.E., we are transforming our Community Advisory Council (2019 – 2022) into our new Lived Experienced Task Force (LET) launching in 2023. The Lived Experience Task Force (LET) will serve as…
On Thursday, December 1st, World AIDS Day, HIV/AIDS, ME/CFS and Long COVID activists are taking action at the White House to demand funding for critical global and domestic health measures to keep our communities safe. Here is how you can join us virtually... The post Take Action Virtually with our…
MEAction is headed back to the White House for another BOLD ACTION on December 1st at 12pm ET for World AIDS Day. Join us virtually—or on-site if you’re able—for an important day of action. We’ve teamed up with the amazing and dedicated activists at Health GAP, ACT UP, Treatment Action…
This week the Patient-Led Research Collaborative (PLRC) announced $4.8 million in biomedical research awards for Long Covid and associated conditions. ine research projects in Long Covid, ME/CFS, dysautonomia, and associated conditions will study “many investigative paths, including microclots, spinal-structural abnormalities, immunologic dysfunction, microbiome changes, mechanisms of sleep dysfunction, computational drug…
Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy…
BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and passive—commitment to seeing healthcare justice for people with ME. It is about bringing our issues to the forefront of public consciousness and putting strong pressure on our leaders to act. Taking…
Caroline Kingdon’s new paper on the NICE guideline for ME was co-written with #MEAction UK volunteer Adam Lowe, as well as Charles Shepherd of the ME Association and Luis Nacul of the London School of Tropical Medicine. As members of the NICE guideline development committee, the authors wrote this paper…
The article published in NY Magazine on Nov 4, 2022, “Has Long COVID Always Existed? The pandemic might not have spawned a new chronic illness but rebranded an old one,” was a disappointing step back 30 years to a time when the science of post-viral conditions was young. Back then,…