October 13, 2021 On Monday, Action for M.E. will attend a roundtable meeting hosted by the National Institute for Health and Care Excellence (NICE). NICE has invited representatives from a range of… This post first appeared on Action for M.E. Read more >>
A person with ME (who wishes to remain anonymous online) sent this letter to the author of The New Yorker article, “The Struggle to Define Long COVID,” and to the magazine’s editor. #MEAction was also concerned to see The New Yorker publish such a disparaging and flawed article about the Long COVID…
October 11, 2021 Update from Forward-ME on the upcoming round table event, hosted by the National Institute for Health and Care Excellence (NICE) next Monday (18 October), to "discuss key issues raised… This post first appeared on Action for M.E. Read more >>
#MEAction UK will be sending a representative to the NICE roundtable discussion on the final ME/CFS guideline, and have had a pre-meeting with NICE to raise our concerns about the delay to publication... This post appeared first on #MEAction Network. Read More
We are deeply saddened to learn of the death of Graham McPhee, citizen scientist and champion for people with M.E./CFS. A former maths teacher, Graham took a forensic approach to… This post first appeared on Action for M.E. Read more >>
#MEAction is proud to be a founding member of the World ME Alliance, a coalition of national ME/CFS organisations, which announces today a major name change and rebrand from the International Alliance for ME. To modernise and promote its unique role, the World ME Alliance is launching a new website,…
September 23, 2021 Action for M.E. is saddened to learn of the death of M.E. campaigner Dr Richard Sykes, aged 89 years. Based in Bristol, Richard founded Westcare in 1990, offering counselling services,… This post first appeared on Action for M.E. Read more >>
September 23, 2021 Bringing people together to share learning, the ALLIANCE's Self-Management Week 2021 starts on Monday.Avril McLean, Action for M.E.'s Advocacy Senior Practitioner in Scotland, will… This post first appeared on Action for M.E. Read more >>
September 21, 2021 Special Educational Needs staff and other education professionals will hear about the impact of M.E., and how they can best support students, at nasen Live 2021 this week. Action for M.E. will co-host… This post first appeared on Action for M.E. Read more >>
September 17, 2021 On 16 September 2021, the Action for M.E. board approved a decision to merge with The ME Trust following a process of due diligence started in June, and after consulting with key stakeholders… This post first appeared on Action for M.E. Read more >>