We are pleased to announce that 12ME, a Belgian organisation that focuses on raising awareness of ME around May 12th and raising funds for scientific research, has joined the World ME Alliance.
At the World ME Alliance we are excited to be expanding our reach, especially in the run up to the first World ME Day on May 12th.
The board of 12ME is made up of individuals with ME and their family members. Some of the board members suffer from severe ME and are completely housebound. Their activities are mainly online, using social media and other tools to raise awareness of ME and connect patients.
Care for people with ME in Belgium is currently falling short. In order to change this 12ME seeks to create dialogue with political authorities and health institutions. In 2020, 12ME highlighted the needs and concerns of people with ME to the Belgian Superior Health Council.
Through their fundraising, they have so far donated €17,000 to ME research.
We are looking for more national ME organisation to join the World ME Alliance – find out more here.