Member MYOS (Associação Nacional Contra a Fibromialgia e Síndrome de Fadiga Crónica) is a trailblazing organisation in Portugal that has been championing the cause of Myalgic Encephalomyelitis (ME) and Fibromyalgia since its establishment in 2003. With a focus on equality and support for both patient groups, MYOS was founded by…
Member ME/CFS Israel is a pioneering organisation dedicated to raising awareness and providing accurate information on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in Israel. They grew organically through social media, building community among people with ME and recognising the opportunity for collective action. With a high-quality website and growing partnerships within…
Member Neúnavní is a charity supporting individuals with Myalgic Encephalomyelitis (ME) in the Czech Republic. Neúnavní provides crucial support services, through free therapy to support individuals learning to live with the disease and monthly community calls. They also work to raise awareness about ME, to dispel myths and promote understanding.…
Member Millions Missing Mexico is a voluntary organisation dedicated to raising awareness about Myalgic Encephalomyelitis (ME) and supporting people with the disease in Mexico. The organisation was founded in 2018 by a group of people with ME and their caregivers who were frustrated by the lack of knowledge and resources…
Member Japan ME Association (JMEA) is a non-profit organisation based in Tokyo, Japan. Their mission is to help create a society where persons with ME are able to receive effective medical care and social security, and where they can live in hope of returning to their healthy lives. They have…
Member Millions Missing France is a voluntary, non-hierarchical organisation based in Auvergne. The team behind this organisation advocate for people with ME across France. Founded in 2018 they are led by a college of six members all of whom have personal experience of ME. This personal experience, including experience of…
Member Millions Missing Belgique is a voluntary organisation that advocates primarily in the French-speaking Wallonie region of Belgium, but works closely with colleagues across the country to ensure their advocacy work speaks to the needs of all. Founded in 2021 and run by a board of three members, it also…
Member ME Support (IOM) was originally established as a self-help group in 1988. It is now a fully-fledged charity providing peer support and information to people with ME across the Isle of Man. Through in-person and online meetings they reduce the isolation many people with ME experience, and build a…
Member ME/CVS Nederland is a Dutch charity working to empower and improve the position of people with ME in the Netherlands. They work to provide information, enable peer education, advocate to government and healthcare providers, and contribute to scientific research. Their board includes people with ME and carers, and they…
Member Millions Missing Canada is a Canadian advocacy organisation focused on research and treatment. Over the past few years, they have led multiple participatory campaigns to reach government and health care officials, raising awareness of the lives of people with ME in Canada and the urgent need for increased research…