The World ME Alliance is excited to announce the inclusion of our newest member organization, ABEMDIS – Brazilian Association for Myalgic Encephalomyelitis and Dysautonomia. This vibrant, committed organization grew from a union of ME/CFS and dysautonomia patients, who were experiencing the same challenges imposed by government, general and medical society. Since establishing in 2024 and becoming an officially formed organization in 2025, they are working together to launch a stronger initiative aimed at increasing visibility not only for ME/CFS patients but also for those with dysautonomia, a commonly associated comorbidity.
Sian Leary, Head of Advocacy and Communications at the World ME Alliance, tells us:
“We are thrilled to welcome ABEMDIS to the World ME Alliance. Their dedication to raising awareness, promoting scientific research, and advocating for legislative changes is testament to the commitment they have to people with ME/CFS and dysautonomia in Brazil. This partnership enhances our collective strength, and we our proud that the World ME Alliance will have representatives in Brazil.”
ABEMDIS has undertaken numerous initiatives aimed at supporting patients and raising public awareness. Most recently they co-led the Vidas Invisiveis demonstration outside the Brazilian Chamber of Deputies, alongside activist Ivana Andrade.
They laid out hundreds of pairs of shoes, spelling out SOS, each with messages from people with ME too unwell to attend themselves.
Priscilla Falcão, representative from ABEMDIS, commented:
“Joining the World ME Alliance is a significant milestone for us. It amplifies our voice and enables us to share the experiences of people with ME/CFS and Dysautonomia in Brazil on a global scale, inputting to global campaigns and advocacy. We are committed to demystifying these conditions and ensuring that patients receive the support and recognition they deserve.”
ABEMDIS has been actively involved in legislative advocacy, campaigning for a national bill that proposes the creation of the National Policy for Comprehensive Care for People with Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS).
By welcoming ABEMDIS to our network, we are not only expanding our geographical footprint but also strengthening our collective resolve to support ME patients through shared knowledge, advocacy, and solidarity.
You can find ABEMDIS on Instagram.
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We continue to welcome more national ME organisations to join the World ME Alliance – if you are interested in finding out more look here.
