Understanding your rights – unpaid carers Carers Rights Day – Thurs 25th NovemberWhy being aware of your rights is so important.In a recent survey of nearly 6,000 carers, the Carers Trust found: Four in five unpaid carers are... News | WAMES (Working for ME in Wales) | Welsh Association of ME…
My Neuro survey 2021 People living with neurological conditions across the UK are being asked to take part in the largest neurological survey to help improve vital services and support. Anybody, of any age, with a neurological condition or suspected neurological condition in England, Scotland, Wales and Northern Ireland can…
Will the World Health Organization’s long COVID definition help or hinder? WAMES has joined other members of the World ME Alliance in writing to the World Health Organization (WHO) concerning their recently published definition of “post COVID-19 condition”, commonly known as long COVID. While we... News | WAMES (Working for…
WAMES asks NHS Wales: Don’t delay! Implement NICE ME/CFS guideline for safe, empathetic & equitable healthcare Poor healthcare for many with ME/CFS in Wales. A new WAMES report into the implementation in Wales of the 2007 NICE guideline illustrates how: few GPs admit being aware of the guidelines and those who…
NICE 2021 ME/CFS guideline – Doctors’ leaders reject ‘evidence based’ change, but many believe the guideline can be transformative. On the whole patients are relieved that the revised NICE guideline for ME/CFS has at last been published and are pleased with the change in direction it has... News | WAMES…
NICE ME/CFS guidelineCautious welcome from WAMES & the ME community WAMES welcomes the publication of the 2021 NICE guideline for ME/CFS and the decision by NICE to ‘follow the science’ regarding... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More
NICE ME/CFS guideline outlines steps for better diagnosis and management NICE has today published its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). It is estimated that there are over 250,000 people in England and Wales with ME/CFS, with about 2.4 times as…
NICE announces next steps for publication of its guideline on ME/CFS NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). NICE will publish the guideline following a meeting of its Guidance…
The House of Lords, Tuesday 12 October 2021 Oral questions: Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome. Lord Kamall, the Parliamentary Under-Secretary of State, Department of Health and Social Care, answered questions from members of the House of Lords…
As a founding member of the International Alliance for ME, WAMES is excited to be part of the development and launch of the World ME Alliance. The Alliance is the only organisation in the world to bring together national ME/CFS organisations to advocate for better recognition and treatments for Myalgic…