Future pandemic preparedness will fail millions without explicit recognition of and research into infection associate chronic conditions. On 20th September 2023, the United Nations General Assembly adopted a Political Declaration on Pandemic Prevention, Preparedness and Response. The commitments outlined in this declaration are vital for enhancing global readiness to tackle…
Caring costs: Carers Rights day Caring Costs in so many ways. It could be the cost to unpaid carers’ wellbeing and ability to access health services. Sometimes it’s the financial costs associated with looking after someone – or the effects on carers’ employment options. Taking care of someone may cost…
WAMES e-news Sign up for the latest news from WAMES, straight to your inbox. Read about: the activities of WAMES what is happening in Wales of interest to people with ME & chronic illness ways to get involved and influence ME research, health & social care in Wales, welfare reform,…
Doctors’ attitudes to medical conditions. On an online medical forum physicians were found to discuss ME/CFS, depression and Lyme disease with more negative language than 21 other diseases. The results for ME/CFS included over 4 times more negative words than the results for depression. Doctors’ attitudes toward specific medical…
Give donations ‘In lieu of gifts’ – to aid our #WAMES_8oo Fundraising Journey Why not celebrate your next special occasion by asking your friends and family to lend support to people with ME/CFS? By asking your friends and family to donate to us instead of... News | WAMES (Working…
ME/CFS Genetics Research Symposium 2022 Action for ME and the University of Edinburgh Human Genetics Unit joined forces to run an ME Genetics Research Symposium on 14 September 2022 in Edinburgh ahead of the launch of the Decode ME study. The symposium brought together researchers interested in ME, people with…
Welsh Government Charter for unpaid Carers This Charter for Unpaid Carers sets out the legal rights of unpaid carers in Wales under the Social Services and Well-being (Wales) Act 2014. These rights are the same for all unpaid carers, whether they are an adult, a young person or a child.…
What is a suitable model for social prescribing in Wales? The Welsh Government want to develop a national framework for social prescribing and is asking Welsh residents to comment. What is social prescribing? Connecting people to community based support The Welsh Government wants to make sure you get…
IACFS/ME’s 15th Medical/ Scientific Conference 27-30 July 2022 If you missed out on this large conference organised by the The International Association for CFS/ME (IACFS/ME) you can now watch the video recordings of the lectures or read some of the many written reports... News | WAMES (Working for ME…
DHSC Delivery Plan on ME/CFS development strategy The Department for Health & Social Care (DHSC) in England has laid out the way they intend to develop the “cross-Government Delivery Plan on ME/CFS for England”, which their Health Secretary announced in May 2022. In a communication to stakeholders on 17th…