CVUHB plans to implement ME/CFS NICE guideline

WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might benefit people with ME. Cardiff and Vale’s University Health Board’s Chief Executive Suzanne Rankin shares their plans for…

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#WAMES_800 Fundraising journey – Can you help?

As WAMES travels along our 8 month fundraising journey we are looking for people with a range of skills and interests to join us. Help us to climb the first column to our fundraising target! Any help with raising funding and spreading the word would be welcome, but we would…

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World ME Day 2022 roundup

After an incredible World ME Day we wanted to share some of the amazing progress made across the globe. As individuals and organisations, our community stepped forward to fight for people with ME everywhere. We're going to do this by country, because there is just so much to cover! This…

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WMEA campaign film: Tell us what the world can #LearnFromME?

On May 12th 2022, WAMES is joining with other groups around the world as the World ME Alliance to launch the first World ME Day, and we’re asking “what can the world #LearnFromME?” The world must listen to people with ME in order to #LearnFromME. Help us make a campaign…

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ME services in Wales can learn from Long COVID Adferiad programme says Health Minister

Welsh Government wants Long COVID community model to also treat and support ME, CFS and MS On 31st March 2022 the Health Minister Eluned Morgan announced further funding for the Adferiad programme for Long COVID recovery: “today I am announcing a further £5 million of Adferiad programme funding to be…

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Sunflower lanyards for invisible disabilities

What is the Sunflower? The Sunflower is a globally recognised symbol for non-visible disabilities, also known as hidden disabilities or invisible disabilities. People living with these often face barriers... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More

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Welsh Neuro Support Groups in March 2022

Neuro Support Groups – #LlaisNiwro Join these Wales Neurological Alliance zoom groups during March to meet others living with and supporting neurological conditions. The group meeting times with links to the Facebook groups are as follows... News | WAMES (Working for ME in Wales) | Welsh Association of ME &…

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Lessons from ME/CFS for long COVID: “Energy System First Aid” for people with PESE (aka PEM)

Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID Part 3: “Energy System First Aid” for People With Post Exertional Symptom Exacerbation, by Todd E Davenport, Staci R Stevens, Jared Stevens, Christopher R Snell, J Mark Van Ness in JOSPT, February 16, 2022 [https://doi.org/10.2519/jospt.blog.20220216] Blog post extract: In a previous post,…

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