Powys Health Board [in Wales] say they are committed to using NICE guidance. WAMES has been asking Health Boards in Wales what plans they have to implement the new NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might benefit people with…
My Neuro survey Wales report 2022 from the WNA Whilst we are cognisant that the pandemic has brought with it unprecedented demand on all health and social services, two years hence, the situation for people living with neurological conditions in Wales is now at crisis point and they feel…
Cwm Taf Morgannwg UHB is “aware of the revised ME/CFS NICE guideline” WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might benefit people with ME. Cwm…
Ensuring the voice of the very severely affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patient is heard in research-a research model, by Helen Baxter Research article abstract: Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant patients who are able to attend clinics. It is estimated…
WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might benefit people with ME. Cardiff and Vale’s University Health Board’s Chief Executive Suzanne Rankin shares their plans for…
As WAMES travels along our 8 month fundraising journey we are looking for people with a range of skills and interests to join us. Help us to climb the first column to our fundraising target! Any help with raising funding and spreading the word would be welcome, but we would…
After an incredible World ME Day we wanted to share some of the amazing progress made across the globe. As individuals and organisations, our community stepped forward to fight for people with ME everywhere. We're going to do this by country, because there is just so much to cover! This…
On May 12th 2022, WAMES is joining with other groups around the world as the World ME Alliance to launch the first World ME Day, and we’re asking “what can the world #LearnFromME?” The world must listen to people with ME in order to #LearnFromME. Help us make a campaign…
As part of the World ME Alliance we want to use World ME Day to reach out to health professionals on a personal basis, to help them build an understanding of ME, so we can take another step towards a world that understands ME. WAMES is proud to be a…
Welsh Government wants Long COVID community model to also treat and support ME, CFS and MS On 31st March 2022 the Health Minister Eluned Morgan announced further funding for the Adferiad programme for Long COVID recovery: “today I am announcing a further £5 million of Adferiad programme funding to be…