“Please prevent thousands and thousands more people from developing ME” – Ivana, Brazil

Name: Ivana Andrade Age: 34 Pronouns: she/her Home: São Paulo, Brazil Sick for: 10 years I've always felt more tired than other people, but was led to believe for many years that this was laziness or depression. At some point in my life I had mononucleosis but we don't know…

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“In my community, it’s taboo to be too sick” – Mlindeni, South Africa

Name: Mlindeni Gabela Pronouns: he/him Age: 41 years old Home: Cape Town, South Africa Sick for: 4 years After I was hospitalised by COVID-19 in 2020, I developed Long Covid and was diagnosed with ME 2 years later. I lost my job as a mixer in an industrial bakery as…

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“We deserve attention” – Mieko, Japan

Name: Mieko Shinohara Age: 66 Pronouns: she/her Home: Tokyo, Japan Sick for: 33.5 years I fell ill while studying in the US and was diagnosed with ME one and a half years after experiencing flu-like symptoms and extremely high EBV antibody levels. My current capacity is less than 5% of…

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