The National Institute for Health and Care Excellence (NICE) has now published its ME/CFS guideline and we are delighted that they have finally listened to the ME community in several key areas.

NICE delayed publication of this guideline in August after concerns were raised by a few Royal Colleges. Instead, they held a roundtable event, chaired by a former President of the Royal College and Physicians, inviting stakeholders of the guideline to discuss these concerns. Janet Sylvester, who attended on behalf of #MEAction UK, said “This was a positive meeting. The discussion put to rest concerns, ensuring this guideline can be effectively implemented.”

Overall, #MEAction UK is…

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