We are no longer accepting applications for this role. Thank you for your interest. We’re recruiting a new Head of Advocacy and Communications for the World ME Alliance. Might you or someone you know be interested? About the Role Are you a strategic thinker who loves connecting people, shaping ideas,…
Ahead of this Severe ME Day — August 8th — the World ME Alliance is proud to launch a vital new publication: Supporting People with Severe and Very Severe ME/CFS: A Resource Guide for Clinicians All over the world, Severe ME patients struggle to get the medical care they need.…
The World ME Alliance is excited to announce the inclusion of our newest member organization, ABEMDIS - Brazilian Association for Myalgic Encephalomyelitis and Dysautonomia. This vibrant, committed organization grew from a union of ME/CFS and dysautonomia patients, who were experiencing the same challenges imposed by government, general and medical society.…
ABEMDIS - Brazilian Association for Myalgic Encephalomyelitis and Dysautonomia is a dedicated organization committed to advocating for individuals affected by ME/CFS and Dysautonomia in Brazil. ABEMDIS has grown from and informal collective into a formal organization with a important mission: to raise awareness of and offer mutual support to people…
Around the world, individuals, organisations and communities are coming together in to mark World ME Day 2025. Below is a breakdown of national events and campaigns happening by country, highlighting the wide range of efforts to raise awareness, push for better care, and demand action for people living with Myalgic…
This World ME Day, on May 12th, communities around the globe are coming together to raise awareness, demand change, and support people living with Myalgic Encephalomyelitis (ME). From international conferences and grassroots activism to creative awareness-raising campaigns and vital educational tools, here’s a roundup of just some of what’s happening…
Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), is a debilitating illness that affects millions of people worldwide. However, persistent myths and misunderstandings hinder its recognition and treatment. Below, we debunk six of the most common myths about ME and share the medical facts everyone should know. Read…
This Severe ME Day, 8th August, the World ME Alliance is highlighting the experiences of people with Severe ME in hospitals across the globe. People with ME everywhere experience stigma, denial of evidence-based science, disdain and dismissal of symptoms by healthcare providers. Yet for those with Severe ME requiring hospital…
Severe ME Day, held on the 8th of August each year, is a significant occasion for the World ME Alliance and the global community affected by Myalgic Encephalomyelitis (ME). This day is dedicated to shedding light on the experience of people with the most severe forms of ME enduring a…
We are delighted to announce the establishment of the Strategic Leadership Board for the World ME Alliance. This initiative marks a significant step forward in our mission to combat myalgic encephalomyelitis (ME) on a global scale. The aim of this board is to promote an efficient and dynamic decision-making process…