September 16, 2021 Action for M.E. is among more than 100 UK and international charities, organisations and support groups, alongside 150 scientific and clinical experts, who have co-signed a letter from… This post first appeared on Action for M.E. Read more >>
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and…
September 11, 2021 Last night, our Chief Executive Sonya Chowdhury and our Medical Adviser Dr David Strain appeared on Kait Borsay’s Times Radio Show to discuss M.E. and Long Covid. A recording of the… Read more >>
September 09, 2021 Thank you so much to those that have shared the views, questions and concerns about the potential merger between Action for M.E. and The ME Trust. There is still time to let us know… Read more >>
Last week, the National Institute of Health and Care Excellence (NICE) announced that, following the pause to the publication of it guideline on diagnosing and managing M.E./CFS, it… This post first appeared on Action for M.E. Read more >>
Founding Member #MEAction is an international network of patients fighting for health equality for ME by building community and mobilizing patients, families, and allies. We were founded with the belief that while we may find it difficult to advocate for ourselves in the physical world, by making our activism accessible,…
Founding Member Working for ME in Wales Our vision is for a Wales where adults and children with ME, CFS and PVFS and their carers are taken seriously and treated with respect, where diagnosis, treatment and services are accessible without a battle. The Welsh Association of ME & CFS Support…
Founding Member The ME community in the UK is served by a considerable range of charities, with even the largest being relatively small. Recognising the benefit of being able to speak with a louder voice, Forward-ME was established as a coordinating body to provide a unified and perhaps louder voice…
Founding Member Our mission is empowering people with M.E. to fulfil their potential and secure the care and support they need, while working towards a greater understanding of the illness and ultimately a cure. Alongside providing targeted information, support and advice to children, young people and adults with M.E., we…