The MELN was set up in 2021 to bring together ME friendship and support groups across the UK. The aims of the MELN are: To create a national network of local ME groups to provide… This post appeared first on Action for M.E. Read more >>
The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum that will remain open for posting ideas and voting and commenting on those ideas until August 10th. In addition to…
As part of #DisabilityPrideMonth, The Century Foundation’s podcast Off-Kilter has been hosting a series of conversations featuring Disability Economic Justice Collaborative* members and other leaders from the disability community. #MEAction board member Ryan Prior is a guest on the two-part Off-Kilter ADA 2022 Special that dives “into the picture for…
We are holding an Employment and Self-Advocacy workshop for adults with M.E. in Scotland on Thursday 28th July, 2pm. Join Action for M.E.’s trained and knowledgeable staff and volunteers… This post appeared first on Action for M.E. Read more >>
*Please note you may find this content distressing* Earlier this morning Jo Mckee, mother of Ella Copley, appeared on Times Radio to discuss the treatment her daughter Ella, who has severe M.E., is receiving at Leeds General Infirmary. Miss Mckee was also featured in the Times coverage which you can…
#MEAction is excited to announce our new Volunteer Survey! We invite everyone to complete the survey. The survey link will be available on #MEAction’s website until Friday, July 29th. We encourage everyone to thoughtfully consider each question, fill out their responses, and submit the survey by the due date. The…
In December 2021, the Scottish Government commissioned Blake Stevenson Ltd to engage with stakeholders, including national charities, local support groups, health and social care clinicians, representatives from Royal Colleges and people with lived experience of ME/CFS, to gather their views on the NICE guideline on ME/CFS, which was updated in…
Last night news broke that the Secretary of State for Health and Social Care Sajid Javid had resigned from his role. This has left people with M.E. feeling concerned because Mr Javid... This post appeared first on Action for M.E. Read more >>
#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked members of our LGBTQIA+ community to share what Pride means to them and what they have learned from this movement that they bring with them to the ME movement. Here are…
#MEAction has been hard at work continuing to advocate to the Department of Health and Human Services (HHS) on behalf of people with ME and Long COVID since our last update in May. HHS has been directed by the White House to play a leading role in coordinating the response…