ME/CFS on TV (Part 3)

ME/CFS ON THE ITALIAN TV SCREEN: A VIRTUOUS MODEL by Giada Da Ros Through sundry television spaces (news, fiction, talk shows), the ME/CFS community challenged existing political, medical, and philosophical approaches to the illness (and to maladies in general).  The community sought to re-appropriate the discourse, fight against stigma and…

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Facets of ME: Loneliness

Welcome to April’s #FacetsOfME where we will focus on loneliness and how this illness affects our need for connection and relationships. Loneliness can be difficult to discuss as contemplating our own loneliness and need for connection can make us feel very vulnerable. Loneliness is certainly not unique to ME but…

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Action for M.E. – What should the world #LearnFromME?

ME is a global health crisis – up to 30 million people are living with this disease worldwide, and when we take into account the effect on families, carers and friends too, the impact of this disease cannot be overstated. In the United Kingdom we have launched Breakthrough-ME: our plan…

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The Virtual Choir is Back — Submissions now Open!

We are excited to announce that submissions are now open to join our next virtual choir! We have so enjoyed sharing your lovely voices with the world, so we had to bring it back for this year’s #MillionsMissing MAY. This year, the song we will be singing is True Colors…

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Hope 4 ME & Fibro Northern Ireland joins the World ME Alliance

As we extend our reach across the globe, we are pleased to have one of the foremost ME organisation in Northern Ireland joining us. Hope 4 ME & Fibro Northern Ireland have an impressive track record in their country over the past decade, and we look forward to seeing how…

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Women’s History Month – Women Who Have Inspired Us

In honor of Women’s History Month, #MEAction asked our community to share which woman or women have inspired them in their advocacy work. The responses are heartfelt, moving, and inspiring. We hope you enjoy reading them! "This Women's History Month, I like many others, will be thinking about the contribution…

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