No Increase in Funding in Latest Plan for ME/CFS Collaborative Research Centers The National Institutes of Health (NIH) has announced their intent to extend the ME/CFS Collaborative Research Center (CRC) program, first launched in 2017, beyond its initial 5-year lifetime. They have issued a $7.1M annual funding opportunity for the…
#MEAction has been a leader in the fight for health equity for people with Myalgic Encephalomyelitis for the past six years, as led by our visionary co-founder and first executive director, Jen Brea, and then by our current executive director, Julia Miele, over the past year. Julia has helped our…
For the first time ever, we’re dedicating an entire month to our annual advocacy event, and registration for congressional meetings is now open! Advocacy Month 2022 will take place virtually throughout the month of... This post appeared first on Solve ME/CFS Initiative. Read More
This year, we are excited to announce that #MillionsMissing will be held in two parts: May and September! #MillionsMissing is about demonstrating our community’s collective refusal to let the stories of people with ME be erased, or access to healthcare and medical research blocked. We protest against all barriers to…
We were deeply saddened to learn of the recent passing of Dr. Ron Tompkins, MD, ScD, chief medical officer at Open Medicine Foundation (OMF). Tompkins is remembered as a gifted scientist and doctor, a compassionate... This post appeared first on Solve ME/CFS Initiative. Read More
#MEAction is excited to launch an all-new educational feature – Facets of ME! We will be diving into the multiple facets of ME/CFS including symptoms, comorbidities, practical tips, and more. Our goal is to take the first Friday of each month and delve into one particular facet of ME in…
Researchers at the University of the West of Scotland (UWS) are undertaking research into ME and long COVID, and are looking for members of the ME community to be involved in the development. The researchers are currently undertaking several studies related to long COVID, including symptom tracking and heart rate…
Dear friend, This week, Representatives Ayanna Pressley and Don Beyer authored a letter to Centers of Disease Control and Prevention (CDC) Director Dr. Rochelle Walenksy asking the CDC to make... This post appeared first on Solve ME/CFS Initiative. Read More
NICE news for Scotland! Throughout the development of the NICE guideline for ME/CFS, #MEAction Scotland has been in regular contact with the Scottish Government about the change needed in Scotland. Now that the guideline has been published, the government has got in touch to involve us in a development. What…
A landmark study published in Science found Epstein-Barr virus (EBV) as the leading cause of Multiple Sclerosis (MS). Given the already-established connection between EBV and ME/CFS, this study may have... This post appeared first on Solve ME/CFS Initiative. Read More