Through three stages of participation, this process is aiming to define the top ten research priorities for people affected by this disease. The process now has just one more step – and you could be part of it. These …This post appeared first on #MEAction Network. Read More
Here’s a hearty hello from the Medieval Town of Medical Education! Lords and Ladies, We did it!… we got over $75,000 (£56,781) which means we have arrived at this new land on our Giving Adventure Map. I’m Laurie Jones, the Managering Elf, and I am going to tell you what…
Two NICE ME/CFS guideline committee members joined #MEAction for a community call, to provide their insight into the guideline process and answer questions. Adam Lowe is a person with ME and has been supporter of various ME organisations, including #MEAction UK and Science for ME. He was one of five…
Incredible news! Thanks to the generosity of a first-time donor, we are so thrilled to announce a new matching challenge. This donor has a passion for our Solve M.E. research... The post New Matching Challenge: Triple Your Donation! appeared first on Solve ME/CFS Initiative. Read More
In advance of next week’s CDC ME/CFS Stakeholder Engagement and Communication (SEC) call, #MEAction has sent a letter to Chronic Viral Diseases Branch Chief Dr. Elizabeth Unger requesting her to clearly and directly address our four key objections to publishing a flawed evidence review of ME/CFS treatments that CDC commissioned.…
On November 12th, just a few days after our launch of the Dear Doctor Campaign, @NICEGetInvolved retweeted our campaign and shared their thanks in our work to educate the medical establishment about the new guideline. This is cause for celebration! This is the start of a real change that has…
Over 1,700 people have now voted for their top ten ME/CFS research priorities in the UK. With the deadline fast approaching this is your last chance to join them and vote. Deadline Monday 13th December 5pm Vote now This process gives greater voice to people affected by ME/CFS to decide…
In survey, 19% of people with ME/CFS said health worsened after vaccination compared to 4% reported by controls. A recent survey conducted by our You + ME Registry found that the health... This post appeared first on Solve ME/CFS Initiative. Read More
In the spirit of giving and giving back this holiday season, we’re excited to launch our #MEAction 2022 Board of Directors Recruitment Campaign! If you are curious about Board Service or want to use your skills to help a growing nonprofit or know someone who would be a great Board…
Announcement: AMMES has recently added an informational page about COVID-19 and ME/CFS. The page includes physicians’ recommendations regarding the COVID … News and Research – American ME and CFS Society Read More