A Response to New Yorker Article on Long COVID

A person with ME (who wishes to remain anonymous online) sent this letter to the author of The New Yorker article, “The Struggle to Define Long COVID,” and to the magazine’s editor. #MEAction was also concerned to see The New Yorker publish such a disparaging and flawed article about the Long COVID…

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An update on the NICE roundtable from #MEAction UK

#MEAction UK will be sending a representative to the NICE roundtable discussion on the final ME/CFS guideline, and have had a pre-meeting with NICE to raise our concerns about the delay to publication... This post appeared first on #MEAction Network. Read More

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World ME Alliance Completes Major Name Change and Rebrand

#MEAction is proud to be a founding member of the World ME Alliance, a coalition of national ME/CFS organisations, which announces today a major name change and rebrand from the International Alliance for ME. To modernise and promote its unique role, the World ME Alliance is launching a new website,…

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Will the 21st Century Cures Act Deliver Innovation and Health Breakthroughs for Post-Infection Diseases?

By Emily Taylor, Director of Advocacy and Community Relations Five years ago, the 21st Century Cures Act (Cures Act) was signed into law making national headlines, launching new health initiatives, and spearheading a new chapter in government scientific investment. With robust funding, multiple government agencies rolled out programs designed to…

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You + ME Anniversary: 2021 Ramsay Researchers!

It’s our one-year anniversary and we’re celebrating all month! Today, we announce our 2021 Ramsay Researchers! The Solve M.E. Ramsay Grant Program is designed to build a workforce, with a special focus on early-career investigators, and to allow researchers to generate data to support larger grant applications. The Ramsay network now includes…

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Solve M.E./UCLA Announce Pilot Funding for ME/CFS Research

Second year of Solve/UCLA partnership September 2021–Solve M.E. is again partnering with the University of California, Los Angeles (UCLA) Iris Cantor Women’s Health Center to fund ME/CFS research through their Annual Health Pilot Program. This round of funding follows last year’s, which supported a clinical study assessing the effects of repetitive transcranial magnetic…

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Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and…

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Sign the Petition to Fix the ICD coding of ME/CFS

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are asking that you sign this petition in support…

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