New York Times Cites Solve M.E Whitepaper, Quotes VP of Advocacy Emily Taylor

This week, New York Times writer Peter Coy’s piece, “Pushing ‘Long Covid’ Sufferers Too Hard Could Cause Them to Crash,” cited our recently released whitepaper, Long Covid’s impact on adult... This post appeared first on Solve ME/CFS Initiative. Read More

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Elevating stories of the #MillionsMissing to HHS leadership

#MEAction is advancing ME/CFS advocacy efforts through our ongoing engagement with U.S. federal agencies, including at the Department of Health and Human Services (HHS). We continue to fight for our government to do more to meet the needs of people with ME, and to ensure that the evolving Long COVID…

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#MEAction Presents: Not Going Quietly Screening & Panel

We have a very exciting opportunity to come together and watch the award-winning documentary Not Going Quietly. We also have an amazing live panel set up to discuss it with us immediately afterwards. Terri Wilder will be moderating and she shares her enthusiasm with us in this short video: We…

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Ask Congress to TREAT & CARE for Post-Infection Diseases During Advocacy Month

Advocacy Month is an opportunity to share the policy solutions vital to address the growing number of individuals suffering from ME/CFS and Long Covid.  ME/CFS devastated the lives of an... This post appeared first on Solve ME/CFS Initiative Read More

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ME/CFS on TV (Part 3)

ME/CFS ON THE ITALIAN TV SCREEN: A VIRTUOUS MODEL by Giada Da Ros Through sundry television spaces (news, fiction, talk shows), the ME/CFS community challenged existing political, medical, and philosophical approaches to the illness (and to maladies in general).  The community sought to re-appropriate the discourse, fight against stigma and…

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Solve M.E. co-authors whitepaper “Long Covid Impact on Adult Americans: Early Indicators Estimating Prevalence and Cost”

This week, Solve M.E. invited members of the press to a special event announcing the release of our new whitepaper, Long Covid Impact on Adult Americans: Early Indicators Estimating Prevalence and Cost. "We co-authored this whitepaper to fill a void; to provide a preliminary analysis of a looming public health…

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Facets of ME: Loneliness

Welcome to April’s #FacetsOfME where we will focus on loneliness and how this illness affects our need for connection and relationships. Loneliness can be difficult to discuss as contemplating our own loneliness and need for connection can make us feel very vulnerable. Loneliness is certainly not unique to ME but…

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The Virtual Choir is Back — Submissions now Open!

We are excited to announce that submissions are now open to join our next virtual choir! We have so enjoyed sharing your lovely voices with the world, so we had to bring it back for this year’s #MillionsMissing MAY. This year, the song we will be singing is True Colors…

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