Each year during Advocacy Month, we host our hallmark EmPOWER M.E. roundtable, during which patient advocates, professionals, and scientists share their expertise on topics relevant to the quality of life... The post EmPOWER M.E.: Local & State Advocacy appeared first on Solve ME/CFS Initiative. Read More
House Appropriations Committee Includes Specific ME/CFS & Long Covid Funding Callouts. This week, the House Appropriations Committee released its report accompanying the fiscal year 2023 Labor, Health and Human Services... The post More Federal Commitment to ME/CFS & Long Covid Research appeared first on Solve ME/CFS Initiative. Read More
#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked members of our LGBTQIA+ community to share what Pride means to them and what they have learned from this movement that they bring with them to the ME movement. Here are…
#MEAction has been hard at work continuing to advocate to the Department of Health and Human Services (HHS) on behalf of people with ME and Long COVID since our last update in May. HHS has been directed by the White House to play a leading role in coordinating the response…
#MEAction is once again excited to announce our Severe ME Artists Project 2022 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their…
At Solve M.E., our advocacy team is dedicated to opening new funding avenues for ME/CFS, Long Covid, and post-infection disease research and care. We’re excited to share that our efforts... The post CDMRP Program at Department of Defense Announces $1.6M Grant for ME/CFS Research appeared first on Solve ME/CFS Initiative.…
Dear New York Community- We need urgent action now to persuade New York Governor Kathy Hochul to sign our ME/CFS bill into law! Take action now! Thanks to you and the #MEAction community, bill A7712B/S6928B, which provides for a myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) education and outreach program in New…
Our team at Solve M.E. is excited to announce that Ilise Friedman recently joined us as major gifts officer to provide her over two-decades long development experience and help us... The post Solve M.E. Welcomes Ilise Friedman, Major Gifts Officer appeared first on Solve ME/CFS Initiative. Read More
Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to…
The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace…