At Solve M.E., our advocacy team is dedicated to opening new funding avenues for ME/CFS, Long Covid, and post-infection disease research and care. We’re excited to share that our efforts... The post CDMRP Program at Department of Defense Announces $1.6M Grant for ME/CFS Research appeared first on Solve ME/CFS Initiative.…
Dear New York Community- We need urgent action now to persuade New York Governor Kathy Hochul to sign our ME/CFS bill into law! Take action now! Thanks to you and the #MEAction community, bill A7712B/S6928B, which provides for a myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) education and outreach program in New…
Our team at Solve M.E. is excited to announce that Ilise Friedman recently joined us as major gifts officer to provide her over two-decades long development experience and help us... The post Solve M.E. Welcomes Ilise Friedman, Major Gifts Officer appeared first on Solve ME/CFS Initiative. Read More
Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to…
WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might benefit people with ME. Cardiff and Vale’s University Health Board’s Chief Executive Suzanne Rankin shares their plans for…
The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace…
As WAMES travels along our 8 month fundraising journey we are looking for people with a range of skills and interests to join us. Help us to climb the first column to our fundraising target! Any help with raising funding and spreading the word would be welcome, but we would…
After taking #MEAction’s photography workshop with photographer Lucia Doynel for #MillionsMissing, Terra Dumont produced these stunning photos as a glimpse into her life as someone living with ME/CFS. Terra spread this experience over 7 days, focusing on a different theme each day. See her wonderful work and accompanying commentary below.…
Action for M.E. is delighted to announce a second ground-breaking PhD, this time in conjunction with the University of Oxford.This comes shortly after announcing our jointly funded collaborative initiative with King’s College London (KCL)Our second PhD has been part-funded by Action for M.E., with the other 50% raised through crowdfunding,…
Action for M.E. and ME Research UK are delighted to announce the launch of a new ground-breaking PhD-level research project in conjunction with King’s College London.This collaborative initiative has been jointly funded between ME Research UK and Action for M.E. and will be hosted at King’s College London. The new…