We know there isn't enough research into ME happening around the world, but there is some and we're highlighting a few projects you might be able participate in. All of our member organisations are working to increase the amount of research happening into ME, and this will continue to be…
It's almost World ME Day (12th May) and we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in Spain, Belgium, the USA, the UK and more. Keep on reading to see how the power of collaboration is spreading World ME Day across continents.…
There is only a week to go until World ME Day on the 12th of May, and as part of this year’s theme, #LearnFromME, we have released a series of actions to help you make an impact. Are you going to take action and help the world #LearnFromME? If so,…
#MEAction continues our advocacy for the #MillionsMissing in a recent meeting with the Office of Disability Employment Policy (ODEP) at the U.S. Department of Labor (DOL) where we presented on community issues affecting people with ME and Long COVID and offered policy recommendations that DOL can take to address them.…
We have a golden opportunity to secure substantial funds to address the clinical care crisis in ME/CFS and Long COVID, but your help is needed NOW. #MEAction and the Patient-Led Research Collaborative have put together a proposal that calls for the State of California to appropriate $120 million for Centers of…
Advocacy Month 2022 focuses on connecting people with ME/CFS, Long Covid, and other related illnesses—brings together scientists, clinicians, and caregivers to educate Congress and the world. As the prevalence and... This post appeared first on Solve ME/CFS Initiative. Read More
Last week, #MEAction Scotland volunteers held the first in a series of community calls. The online meetings will take place quarterly and have been set up to connect us with more people with ME and allies across Scotland. Our first call was a success! We were delighted to be joined…
May 12th has been designated as International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) since 1992. The CIND … American ME and CFS Society Read More
Fotowedstrijd 12ME Om de internationale bewustmakingsdag voor ME/CVS in de kijker te zetten, organiseert 12ME een online fotowedstrijd! Maak met je smartphone een prachtige foto van iets dat je raakt, iets dat je omgeving typeert of iets dat betekenis heeft voor je. De foto heeft als bedoeling om een kunstzinnige…
The ME community is particularly incredible in one way – it is active and engaged. This has partly from come from necessity – people with ME have had to speak out for themselves as other parts of society have not. But it is also one of our greatest strengths. Showing…