Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and…

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Sign the Petition to Fix the ICD coding of ME/CFS

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are asking that you sign this petition in support…

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NICE – ME community response to ‘Roundtable’ announcement

The ME community responds to NICE ‘Roundtable’ announcement NICE made an announcement about ‘next steps’ following the ‘pause’ in publication– a roundtable discussion between stakeholders in September. WAMES responded by writing to NICE expressing our commitment to the publication of the ME/CFS guideline, our willingness to join the Roundtable &…

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Research: An alternative model of CBT for CFS/ME

‘A life I can cope with’. An alternative model of cognitive behavioural therapy (CBT) for CFS/ME, by Catherine Clark, Sue Holttum in Health Expectations 2021 [DOI: 10.1111/h ex.13326] Research abstract:ObjectivesThis study aimed to explore the experience of cognitive behavioural therapy (CBT) aimed at better management of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), rather…

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