As part of #DisabilityPrideMonth, The Century Foundation’s podcast Off-Kilter has been hosting a series of conversations featuring Disability Economic Justice Collaborative* members and other leaders from the disability community. #MEAction board member Ryan Prior is a guest on the two-part Off-Kilter ADA 2022 Special that dives “into the picture for…
Bestel je eigen 12ME T-shirt. We zijn bijzonder trots om onze eigen 12ME T-shirts voor te stellen!Het shirt is koningsblauw met ons logo groot in het midden bedrukt. De maten zijn unisex en je kan ze bestellen in small, medium, large, XL en XXL-formaat. Wij vinden de maten relatief groot…
Cwm Taf Morgannwg UHB is “aware of the revised ME/CFS NICE guideline” WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might benefit people with ME. Cwm…
We are holding an Employment and Self-Advocacy workshop for adults with M.E. in Scotland on Thursday 28th July, 2pm. Join Action for M.E.’s trained and knowledgeable staff and volunteers… This post appeared first on Action for M.E. Read more >>
*Please note you may find this content distressing* Earlier this morning Jo Mckee, mother of Ella Copley, appeared on Times Radio to discuss the treatment her daughter Ella, who has severe M.E., is receiving at Leeds General Infirmary. Miss Mckee was also featured in the Times coverage which you can…
#MEAction is excited to announce our new Volunteer Survey! We invite everyone to complete the survey. The survey link will be available on #MEAction’s website until Friday, July 29th. We encourage everyone to thoughtfully consider each question, fill out their responses, and submit the survey by the due date. The…
The following essay is a guest feature from our friend, journalist Fiona Lowenstein. Fiona is the founder of Body Politic, a grassroots health justice organization for individuals with Long Covid. In... The post Guest Feature from Fiona Lowenstein: Chronic Illness Communities on Vaccines appeared first on Solve ME/CFS Initiative. Read More
Ensuring the voice of the very severely affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patient is heard in research-a research model, by Helen Baxter Research article abstract: Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant patients who are able to attend clinics. It is estimated…
In December 2021, the Scottish Government commissioned Blake Stevenson Ltd to engage with stakeholders, including national charities, local support groups, health and social care clinicians, representatives from Royal Colleges and people with lived experience of ME/CFS, to gather their views on the NICE guideline on ME/CFS, which was updated in…
Last night news broke that the Secretary of State for Health and Social Care Sajid Javid had resigned from his role. This has left people with M.E. feeling concerned because Mr Javid... This post appeared first on Action for M.E. Read more >>