12ME doneert 4000 euro aan Solve ME/CFS Initiative 12ME is trots om op de internationale ME/CVS-dag opnieuw 4000 euro te doneren aan wetenschappelijk onderzoek. Deze keer doneren we de opbrengst van de hartenwafeltjes die we in de eindejaarsperiode bakten, aan Solve ME/CFS Initiative. Solve werd opgericht in 1987 en is…
This World ME Day we asked our community to customise poster to demonstrate what we should all #LearnFromME. The profound loss endured by people with ME comes through, alongside the joy so many in our community still find, facts and figures about ME, and nuggets of wisdom or knowledge that…
Winnaar 12ME fotowedstrijd “Deze bloedende hartjes staan symbool voor het verlies van mijn dromen, mijn doelen, om wat ik kon en om wie ik was.” (Ik heb deze foto in mijn tuin gemaakt – anonieme inzending). Van 1 tot 12 mei 2022 organiseerde 12ME een fotowedstrijd om de internationale bewustmakingsdag…
We know there isn't enough research into ME happening around the world, but there is some and we're highlighting a few projects you might be able participate in. All of our member organisations are working to increase the amount of research happening into ME, and this will continue to be…
It's almost World ME Day (12th May) and we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in Spain, Belgium, the USA, the UK and more. Keep on reading to see how the power of collaboration is spreading World ME Day across continents.…
There is only a week to go until World ME Day on the 12th of May, and as part of this year’s theme, #LearnFromME, we have released a series of actions to help you make an impact. Are you going to take action and help the world #LearnFromME? If so,…
#MEAction continues our advocacy for the #MillionsMissing in a recent meeting with the Office of Disability Employment Policy (ODEP) at the U.S. Department of Labor (DOL) where we presented on community issues affecting people with ME and Long COVID and offered policy recommendations that DOL can take to address them.…
Advocacy Month 2022 focuses on connecting people with ME/CFS, Long Covid, and other related illnesses—brings together scientists, clinicians, and caregivers to educate Congress and the world. As the prevalence and... This post appeared first on Solve ME/CFS Initiative. Read More
We have a golden opportunity to secure substantial funds to address the clinical care crisis in ME/CFS and Long COVID, but your help is needed NOW. #MEAction and the Patient-Led Research Collaborative have put together a proposal that calls for the State of California to appropriate $120 million for Centers of…
Last week, #MEAction Scotland volunteers held the first in a series of community calls. The online meetings will take place quarterly and have been set up to connect us with more people with ME and allies across Scotland. Our first call was a success! We were delighted to be joined…