We are proud to announce that Millions Missing Canada is joining our Alliance. This organisation was born out of the Millions Missing movement founded and run by #MEAction. It was established by four core members: three who have ME and one who cared for her severely ill daughter. As an…
Member Millions Missing Canada is a Canadian advocacy organisation focused on research and treatment. Over the past few years, they have led multiple participatory campaigns to reach government and health care officials, raising awareness of the lives of people with ME in Canada and the urgent need for increased research…
Creatieve infomarkt te Gent (11/09/2022) Graag nodigen we jullie op zondag 11 september uit op een creatief en informatief minimarktje van 12ME. Van 11.00 tot 17.00 uur vind je ons aan de Parkresidentie van Institut Moderne te Gent. Alle spulletjes die we verkopen zijn handgemaakt en/of ontworpen door patiënten met ME/ CVS en hun…
Powys Health Board [in Wales] say they are committed to using NICE guidance. WAMES has been asking Health Boards in Wales what plans they have to implement the new NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might benefit people with…
It’s been more than two years since we launched the You + ME Registry and we’re thrilled to have over 6,500 people contributing data to the community. We also have... The post First You + ME Registry Publication Is Available Online Now! appeared first on Solve ME/CFS Initiative. Read More…
We are excited to announce a new program being introduced by Solve M.E. and invite our community play an important part in its roll out. Solve M.E. is on the verge of launching the first of its kind national TV and Radio Public Service Announcement (PSA) campaign about Long Covid…
As the UK approaches an unprecedented energy crisis this Winter, the National Energy Action predicts that 8.7 million UK households will be in fuel poverty. This is double the 4.5 million... This post appeared first on Action for M.E. Read more >>
A collection of works by artists with severe ME. #MEAction is excited to announce our Severe ME Artist Project 2022— Gallery! The Severe ME Artist Project 2022 features work from those within the severe ME community and is in recognition of Severe ME Day on August 8th. We had a…
Caroline Kingdon, RN, MSc, is a research nurse for CureME, an organization at the forefront of participatory epidemiological, clinical and laboratory research into ME/CFS in the UK. She is also... The post CureME’s Caroline Kingdon on Representing People with Severe ME in Research appeared first on Solve ME/CFS Initiative. Read…
Registration is now open. Earlier this month we shared an exciting save the date. We now have the date of Wednesday 14th September for our ME Genetics Research Symposium. It will be… This post appeared first on Action for M.E. Read more >>