#MEAction has been hard at work continuing to advocate to the Department of Health and Human Services (HHS) on behalf of people with ME and Long COVID since our last update in May. HHS has been directed by the White House to play a leading role in coordinating the response…
#MEAction is once again excited to announce our Severe ME Artists Project 2022 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their…
You are invited to join us for a Self-Advocacy webinar via Zoom live on Tuesday 26 July 12:30 pm-2:30 pm hosted by our friendly Advocacy team. The webinar will be centred around Housing in England for Adults with M.E. and will give an overview of some common housing-related queries we…
At Solve M.E., our advocacy team is dedicated to opening new funding avenues for ME/CFS, Long Covid, and post-infection disease research and care. We’re excited to share that our efforts... The post CDMRP Program at Department of Defense Announces $1.6M Grant for ME/CFS Research appeared first on Solve ME/CFS Initiative.…
Dear New York Community- We need urgent action now to persuade New York Governor Kathy Hochul to sign our ME/CFS bill into law! Take action now! Thanks to you and the #MEAction community, bill A7712B/S6928B, which provides for a myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) education and outreach program in New…
Our team at Solve M.E. is excited to announce that Ilise Friedman recently joined us as major gifts officer to provide her over two-decades long development experience and help us... The post Solve M.E. Welcomes Ilise Friedman, Major Gifts Officer appeared first on Solve ME/CFS Initiative. Read More
Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to…
WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might benefit people with ME. Cardiff and Vale’s University Health Board’s Chief Executive Suzanne Rankin shares their plans for…
The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace…
As WAMES travels along our 8 month fundraising journey we are looking for people with a range of skills and interests to join us. Help us to climb the first column to our fundraising target! Any help with raising funding and spreading the word would be welcome, but we would…