MAY 12th: International ME/CFS And FM Awareness Day
May 12th has been designated as International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) since 1992. The CIND … American ME and CFS Society Read More
Fotowedstrijd 12ME
Fotowedstrijd 12ME Om de internationale bewustmakingsdag voor ME/CVS in de kijker te zetten, organiseert 12ME een online fotowedstrijd! Maak met je smartphone een prachtige foto van iets dat je raakt, iets dat je omgeving typeert of iets dat betekenis heeft voor je. De foto heeft als bedoeling om een kunstzinnige…
World ME Day custom poster maker goes live – what will you create?
The ME community is particularly incredible in one way – it is active and engaged. This has partly from come from necessity – people with ME have had to speak out for themselves as other parts of society have not. But it is also one of our greatest strengths. Showing…
CDMRP for ME/CFS: Navigating the Grant Application Process
Solve M.E. hosted special guest, Cecilia Dupecher, PhD Program Manager for PRMRP at the Congressionally Directed Medical Research Programs (CDMRP) for an informational webinar designed to better inform and prepare... This post appeared first on Solve ME/CFS Initiative. Read More
What’s happening around the globe for World ME Day?
In the run up to World ME Day on the 12th May we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in New Zealand, Italy, the USA, Northern Ireland and the wider UK. Keep on reading to see how the power of collaboration…
New York Times Cites Solve M.E Whitepaper, Quotes VP of Advocacy Emily Taylor
This week, New York Times writer Peter Coy’s piece, “Pushing ‘Long Covid’ Sufferers Too Hard Could Cause Them to Crash,” cited our recently released whitepaper, Long Covid’s impact on adult... This post appeared first on Solve ME/CFS Initiative. Read More
UK Warm Home Discount denied to thousands with disabilities
With energy bills rising 14 times faster than wages, households this winter are predicted to see a fall in real-wage income by nearly £1,000. British Gas further estimates that energy… This post first appeared on Action for M.E. Read more >>
Elevating stories of the #MillionsMissing to HHS leadership
#MEAction is advancing ME/CFS advocacy efforts through our ongoing engagement with U.S. federal agencies, including at the Department of Health and Human Services (HHS). We continue to fight for our government to do more to meet the needs of people with ME, and to ensure that the evolving Long COVID…
#MEAction Presents: Not Going Quietly Screening & Panel
We have a very exciting opportunity to come together and watch the award-winning documentary Not Going Quietly. We also have an amazing live panel set up to discuss it with us immediately afterwards. Terri Wilder will be moderating and she shares her enthusiasm with us in this short video: We…
Blue Sunday 2022 – The Tea Party for M.E.
After an amazing year in 2021, raising over £20,000 for M.E. charities across the world, champion fundraiser Anna Redshaw is inviting you to take part in her Blue Sunday Tea Party 2022… This post appeared first on Action for M.E. Read more >>
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